Search Results - "Heuer, Karli" :: K.UTB vyhledávací portál

The patient experience of Wilson disease: a conceptual model based on qualitative research

by Karantzoulis, Stella, Heuer, Karli, Sparling, Nicole, Teynor, Megan
Published in Orphanet journal of rare diseases (19.10.2021)

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Exploring the Content Validity of the Unified Wilson Disease Rating Scale: Insights from Qualitative Research

by Karantzoulis, Stella, Heuer, Karli, Sparling, Nicole, Meltzer, Brian, Teynor, Megan
Published in Advances in therapy (01.05.2024)

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Motor function limitations and impacts among patients with GM1 AND GM2 gangliosidoses in the United States: A qualitative study

by Ng-Mak, Daisy, Rodriguez, Maria Belen, Heuer, Karli, Waggoner, Christine, Jussila, Diana, Pulikottil-Jacob, Ruth, Perez, Nancy Gabriela, Krupnick, Robert
Published in Molecular genetics and metabolism (01.04.2024)

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Development of an Item Bank to Assess Patient-Reported Outcomes: Signs, Symptoms, and Impacts of COVID-19

by Reaney, Matthew, Turnbull, James, Paty, Jean, Heuer, Karli, Gwaltney, Chad
Published in The patient : patient-centered outcomes research (01.11.2022)

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Journal Article

The patient experience of Wilson disease: a conceptual model based on qualitative research

Exploring the Content Validity of the Unified Wilson Disease Rating Scale: Insights from Qualitative Research

Motor function limitations and impacts among patients with GM1 AND GM2 gangliosidoses in the United States: A qualitative study

Development of an Item Bank to Assess Patient-Reported Outcomes: Signs, Symptoms, and Impacts of COVID-19

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