Impact and burden of acid sphingomyelinase deficiency from a patient and caregiver perspective
Pokrzywinski, Robin, Hareendran, Asha, Nalysnyk, Luba, Cowie, Sandy, Crowe, Joslyn, Hopkin, Justin, Joshi, Dhaivat, Pulikottil-Jacob, Ruth
Published in Scientific reports (25.10.2021)
Published in Scientific reports (25.10.2021)
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Journal Article
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group
Harrington, Rachel L., Hanna, Maya L., Oehrlein, Elisabeth M., Camp, Rob, Wheeler, Russell, Cooblall, Clarissa, Tesoro, Theresa, Scott, Amie M., von Gizycki, Rainald, Nguyen, Francis, Hareendran, Asha, Patrick, Donald L., Perfetto, Eleanor M.
Published in Value in health (01.06.2020)
Published in Value in health (01.06.2020)
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Journal Article
Development and exploration of the content validity of a patient-reported outcome measure to evaluate the impact of migraine- the migraine physical function impact diary (MPFID)
Hareendran, Asha, Mannix, Sally, Skalicky, Anne, Bayliss, Martha, Blumenfeld, Andrew, Buse, Dawn C, Desai, Pooja R, Ortmeier, Brian G, Sapra, Sandhya
Published in Health and quality of life outcomes (17.11.2017)
Published in Health and quality of life outcomes (17.11.2017)
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Journal Article
Multinational Trials—Recommendations on the Translations Required, Approaches to Using the Same Language in Different Countries, and the Approaches to Support Pooling the Data: The ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force Report
Wild, Diane, MSc, Eremenco, Sonya, MA, Mear, Isabelle, MA, Martin, Mona, RN, MPA, Houchin, Caroline, MA, Gawlicki, Mary, MBA, Hareendran, Asha, PhD, Wiklund, Ingela, PhD, Chong, Lee Yee, PhD, von Maltzahn, Robyn, MSc, Cohen, Lawrence, PharmD, BCPP, FASHP, FCCP, Molsen, Elizabeth, RN
Published in Value in health (01.06.2009)
Published in Value in health (01.06.2009)
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Journal Article
Using Health-Related Social Media to Understand the Experiences of Adults With Lung Cancer in the Era of Immuno-Oncology and Targeted Therapies: Observational Study
Booth, Alison, Manson, Stephanie, Halhol, Sonia, Merinopoulou, Evie, Raluy-Callado, Mireia, Hareendran, Asha, Knoll, Stefanie
Published in JMIR cancer (12.07.2023)
Published in JMIR cancer (12.07.2023)
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Journal Article
The Severity of Chronic Cough Diary (SCCD): development and content validation of a novel patient-reported outcome instrument for evaluating the symptom experience of chronic cough
de la Orden Abad, Margarita, Haberland, Claudia, Karn, Hayley, Skalicky, Anne, Hareendran, Asha
Published in Journal of patient-reported outcomes (10.07.2023)
Published in Journal of patient-reported outcomes (10.07.2023)
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Journal Article
Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire
Harrington, Magdalena, Hareendran, Asha, Skalicky, Anne, Wilson, Hilary, Clark, Marci, Mikl, Jaromir
Published in Journal of patient-reported outcomes (23.07.2019)
Published in Journal of patient-reported outcomes (23.07.2019)
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Journal Article
The development of a patient-reported outcome measure for assessing nighttime symptoms of chronic obstructive pulmonary disease
Hareendran, Asha, Palsgrove, Andrew C, Mocarski, Michelle, Schaefer, Michael L, Setyawan, Juliana, Carson, Robyn, Make, Barry
Published in Health and quality of life outcomes (25.06.2013)
Published in Health and quality of life outcomes (25.06.2013)
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Journal Article
The venous leg ulcer quality of life (VLU-QoL) questionnaire: development and psychometric validation
Hareendran, Asha, Doll, Helen, Wild, Diane J., Moffatt, Christine J., Musgrove, Elaine, Wheatley, Carolyn, Franks, Peter J.
Published in Wound repair and regeneration (01.07.2007)
Published in Wound repair and regeneration (01.07.2007)
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Journal Article
Measuring the impact of migraine for evaluating outcomes of preventive treatments for migraine headaches
Mannix, Sally, Skalicky, Anne, Buse, Dawn C, Desai, Pooja, Sapra, Sandhya, Ortmeier, Brian, Widnell, Katherine, Hareendran, Asha
Published in Health and quality of life outcomes (06.10.2016)
Published in Health and quality of life outcomes (06.10.2016)
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Journal Article
Development of the SMA independence scale–upper limb module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA
Trundell, Dylan, Skalicky, Anne, Staunton, Hannah, Hareendran, Asha, Le Scouiller, Stephanie, Barrett, Louise, Cooper, Owen, Gorni, Ksenija, Seabrook, Tim, Jethwa, Sangeeta, Cano, Stefan
Published in Journal of the neurological sciences (15.01.2022)
Published in Journal of the neurological sciences (15.01.2022)
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Journal Article
Electronic Diaries: Exploring Cross-Cultural Preferences and Acceptability
Abraham, Lucy, Field, Belinda, Svihra, Jan, Hareendran, Asha, Martin, Mona L., Bushnell, Donald M., Gong, Quan Jason, Levinson, Ivan, Streeter, James S.
Published in Drug information journal (01.07.2006)
Published in Drug information journal (01.07.2006)
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Journal Article
Psychometric Evaluation of a Novel Instrument Assessing the Impact of Migraine on Physical Functioning: The Migraine Physical Function Impact Diary
Kawata, Ariane K., Hsieh, Ray, Bender, Randall, Shaffer, Shannon, Revicki, Dennis A., Bayliss, Martha, Buse, Dawn C., Desai, Pooja, Sapra, Sandhya, Ortmeier, Brian, Hareendran, Asha
Published in Headache (01.10.2017)
Published in Headache (01.10.2017)
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Journal Article
WITHDRAWN: Development of the SMA Independence Scale–Upper Limb Module (SMAIS–ULM): A novel scale for individuals with Type 2 and non-ambulant Type 3 SMA
Trundell, Dylan, Skalicky, Anne, Staunton, Hannah, Hareendran, Asha, Le Scouiller, Stephanie, Barrett, Louise, Cooper, Owen, Gorni, Ksenija, Seabrook, Tim, Jethwa, Sangeeta, Cano, Stefan
Published in Journal of the neurological sciences (01.01.2021)
Published in Journal of the neurological sciences (01.01.2021)
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Journal Article
Reducing the physical, social, and emotional impact of episodic migraine: Results from erenumab STRIVE and ARISE phase III randomized trials
Kawata, Ariane K., Ladd, Mary Kate, Lipton, Richard B., Buse, Dawn C., Bensink, Mark, Shah, Shweta, Hareendran, Asha, Mannix, Sally, Mikol, Daniel
Published in Headache (01.02.2022)
Published in Headache (01.02.2022)
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Journal Article
Evaluating the Psychometric Properties of the Migraine Functional Impact Questionnaire (MFIQ)
Kawata, Ariane K., Hareendran, Asha, Shaffer, Shannon, Mannix, Sally, Thach, Andrew, Desai, Pooja, Mikol, Daniel D., Ortmeier, Brian, Bayliss, Martha, Buse, Dawn C.
Published in Headache (01.09.2019)
Published in Headache (01.09.2019)
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Journal Article