Adult care for Duchenne muscular dystrophy in the UK
Rodger, Sunil, Woods, Katherine L., Bladen, Catherine L., Stringer, Angela, Vry, Julia, Gramsch, Kathrin, Kirschner, Janbernd, Thompson, Rachel, Bushby, Katharine, Lochmüller, Hanns
Published in Journal of neurology (01.03.2015)
Published in Journal of neurology (01.03.2015)
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Journal Article
Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries
Otto, Christiane, Steffensen, Birgit F., Højberg, Ann-Lisbeth, Barkmann, Claus, Rahbek, Jes, Ravens-Sieberer, Ulrike, Mahoney, Annette, Vry, Julia, Gramsch, Kathrin, Thompson, Rachel, Rodger, Sunil, Bushby, Kate, Lochmüller, Hanns, Kirschner, Janbernd
Published in Journal of neurology (01.04.2017)
Published in Journal of neurology (01.04.2017)
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Journal Article
A comparative study of care practices for young boys with Duchenne muscular dystrophy between Japan and European countries: Implications of early diagnosis
Takeuchi, Fumi, Komaki, Hirofumi, Yamagata, Zentaro, Maruo, Kazushi, Rodger, Sunil, Kirschner, Janbernd, Kubota, Takeo, Kimura, En, Takeda, Shin'ichi, Gramsch, Kathrin, Vry, Julia, Bushby, Kate, Lochmüller, Hanns, Wada, Keiji, Nakamura, Harumasa
Published in Neuromuscular disorders : NMD (01.10.2017)
Published in Neuromuscular disorders : NMD (01.10.2017)
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The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases
Rodger, Sunil, Lochmüller, Hanns, Tassoni, Adrian, Gramsch, Kathrin, König, Kirsten, Bushby, Kate, Straub, Volker, Korinthenberg, Rudolf, Kirschner, Janbernd
Published in Orphanet journal of rare diseases (23.10.2013)
Published in Orphanet journal of rare diseases (23.10.2013)
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Journal Article
European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences
Vry, Julia, Gramsch, Kathrin, Rodger, Sunil, Thompson, Rachel, Steffensen, Birgit F., Rahbek, Jes, Doerken, Sam, Tassoni, Adrian, Beytía, María de los Angeles, Guergueltcheva, Velina, Chamova, Teodora, Tournev, Ivailo, Kostera-Pruszczyk, Anna, Kaminska, Anna, Lusakowska, Anna, Mrazova, Lenka, Pavlovska, Lenka, Strenkova, Jana, Vondráček, Petr, Garami, Marta, Karcagi, Veronika, Herczegfalvi, Ágnes, Bushby, Katherine, Lochmüller, Hanns, Kirschner, Janbernd
Published in Journal of neuromuscular diseases (29.11.2016)
Published in Journal of neuromuscular diseases (29.11.2016)
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Journal Article
How reference networks develop, implement, and monitor guidelines
Kirschner, Jan, Rodger, Sunil, Vry, Julia, Gramsch, Kathrin, Lochmüller, Hanns, Bushby, Kate
Published in Orphanet journal of rare diseases (01.01.2012)
Published in Orphanet journal of rare diseases (01.01.2012)
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Journal Article