How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “With Li‐Fraumeni syndrome, it’s just an intermission”
Werner‐Lin, Allison, Forbes Shepherd, Rowan, Rising, Camella J., Thompson, Ashley S., Huelsnitz, Chloe, Wilsnack, Catherine, Boyd, Patrick, Sleight, Alix G., Hutson, Sadie, Khincha, Payal P.
Published in Psycho-oncology (Chichester, England) (01.03.2023)
Published in Psycho-oncology (Chichester, England) (01.03.2023)
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Journal Article
"I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome
Forbes Shepherd, Rowan, Werner-Lin, Allison, Keogh, Louise A., Delatycki, Martin B., Forrest, Laura E.
Published in Journal of psychosocial oncology (2021)
Published in Journal of psychosocial oncology (2021)
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Journal Article
Becoming and being a parent with an inherited predisposition to diffuse gastric cancer: A qualitative study of young adults with a CDH1 pathogenic variant
Tutty, Erin, Forbes Shepherd, Rowan, Hoskins, Cass, Purvis, Rebecca, Shanahan, Mary, Boussioutas, Alex, Forrest, Laura E.
Published in Journal of psychosocial oncology (2023)
Published in Journal of psychosocial oncology (2023)
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Journal Article
The Clinical and Psychosocial Outcomes for Women Who Received Unexpected Clinically Actionable Germline Information Identified through Research: An Exploratory Sequential Mixed-Methods Comparative Study
Forrest, Laura E, Forbes Shepherd, Rowan, Tutty, Erin, Pearce, Angela, Campbell, Ian, Devereux, Lisa, Trainer, Alison H, James, Paul A, Young, Mary-Anne
Published in Journal of personalized medicine (07.07.2022)
Published in Journal of personalized medicine (07.07.2022)
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Journal Article
Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome
bes Shepherd, Rowan, Keogh, Louise A, Werner-Lin, Allison, Delatycki, Martin B, rest, Laura E
Published in Australian journal of general practice (01.08.2021)
Published in Australian journal of general practice (01.08.2021)
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Journal Article
Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body
Werner-Lin, Allison, Forbes Shepherd, Rowan, Young, Jennifer L., Wilsnack, Catherine, Merrill, Shana L., Greene, Mark H., Khincha, Payal P.
Published in Social science & medicine (1982) (01.05.2022)
Published in Social science & medicine (1982) (01.05.2022)
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Journal Article
Patient communication and experiences in cancer clinical drug trials: a mixed-method study at a specialist clinical trials unit
Forbes Shepherd, Rowan, Bradford, Ashleigh, Lieschke, Marian, Shackleton, Kylie, Hyatt, Amelia
Published in Current controlled trials in cardiovascular medicine (13.06.2023)
Published in Current controlled trials in cardiovascular medicine (13.06.2023)
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Journal Article
Defining the complex needs of families with rare diseases-the example of telomere biology disorders
Wilsnack, Catherine, Rising, Camella J, Pearce, Emily E, Forbes Shepherd, Rowan, Thompson, Ashley S, Majid, Alina, Werner-Lin, Allison, Savage, Sharon A, Hutson, Sadie P
Published in European journal of human genetics : EJHG (01.10.2024)
Published in European journal of human genetics : EJHG (01.10.2024)
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Journal Article
Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome
Forbes Shepherd, Rowan, Werner-Lin, Allison, Keogh, Louise A., Delatycki, Martin B., Forrest, Laura E.
Published in Qualitative health research (01.01.2022)
Published in Qualitative health research (01.01.2022)
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Journal Article
A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer
Forbes Shepherd, Rowan, Browne, Tamara Kayali, Warwick, Linda
Published in Journal of genetic counseling (01.04.2017)
Published in Journal of genetic counseling (01.04.2017)
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Journal Article
Finding the five‐year window: A qualitative study examining young women's decision‐making and experience of using tamoxifen to reduce BRCA1/2 breast cancer risk
Forrest, Laura E., Forbes Shepherd, Rowan, Young, Mary‐Anne, Keogh, Louise A., James, Paul A.
Published in Psycho-oncology (Chichester, England) (01.02.2021)
Published in Psycho-oncology (Chichester, England) (01.02.2021)
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Journal Article
Health professionals’ practice for young people with, or at risk of, Li–Fraumeni syndrome: An Australasian survey
Forbes Shepherd, Rowan, Keogh, Louise A., Werner‐Lin, Allison, Delatycki, Martin B., Forrest, Laura E.
Published in Journal of genetic counseling (01.10.2020)
Published in Journal of genetic counseling (01.10.2020)
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Journal Article
Relating to the Body Under Chronic Cancer Threat: Implications for Psychosocial Health Among Adolescents and Young Adults with Cancer Predisposition Syndromes
Rising, Camella J, Forbes Shepherd, Rowan, Sleight, Alix G, Boyd, Patrick, Wilsnack, Catherine, Thompson, Ashley S, Huelsnitz, Chloe O, Hutson, Sadie P, Khincha, Payal P, Werner-Lin, Allison
Published in Journal of adolescent and young adult oncology (27.09.2024)
Published in Journal of adolescent and young adult oncology (27.09.2024)
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Journal Article
Unselected Women's Experiences of Receiving Genetic Research Results for Hereditary Breast and Ovarian Cancer: A Qualitative Study
Forbes Shepherd, Rowan, Forrest, Laura E, Tutty, Erin, Pearce, Angela, Devereux, Lisa, James, Paul A, Campbell, Ian G, Trainer, Alison, Young, Mary-Anne
Published in Genetic testing and molecular biomarkers (01.12.2021)
Published in Genetic testing and molecular biomarkers (01.12.2021)
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Journal Article
Men's experiences of recontact about a potential increased risk of prostate cancer due to Lynch Syndrome: “Just another straw on the stack”
Rasmussen, Victoria, Forbes Shepherd, Rowan, Forrest, Laura Elenor, James, Paul A., Young, Mary‐Anne
Published in Journal of genetic counseling (01.08.2019)
Published in Journal of genetic counseling (01.08.2019)
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Journal Article
Diet and physical activity behaviors: how are they related to illness perceptions, coping, and health-related quality of life in young people with hereditary cancer syndromes?
Rising, Camella J., Huelsnitz, Chloe O., Shepherd, Rowan Forbes, Klein, William M. P., Sleight, Alix G., Wilsnack, Catherine, Boyd, Patrick, Feldman, Alexandra E., Khincha, Payal P., Werner-Lin, Allison
Published in Journal of behavioral medicine (01.08.2024)
Published in Journal of behavioral medicine (01.08.2024)
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Journal Article
Evaluation of telephone genetic counselling to facilitate germline BRCA1/2 testing in women with high-grade serous ovarian cancer
Tutty, Erin, Petelin, Lara, McKinley, Joanne, Young, Mary-Anne, Meiser, Bettina, Rasmussen, Victoria M, Forbes Shepherd, Rowan, James, Paul A, Forrest, Laura E
Published in European journal of human genetics : EJHG (01.08.2019)
Published in European journal of human genetics : EJHG (01.08.2019)
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Journal Article