Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study
Wu, Yin, Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Gagarine, Maria, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Negeri, Zelalem, Patten, Scott, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea, Thombs, Brett D., Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Richard, Michelle, Sauvé, Maureen, Welling, Joep, Fligelstone, Kim, Gottesman, Karen, Leite, Catarina, Pérez, Elisabet, Baron, Murray, Malcarne, Vanessa, Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, Ells, Carolyn, van den Ende, Cornelia, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R., Larche, Maggie, Nguyen, Christelle, Pope, Janet, Rannou, François, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, Bernstein, Elana J., Berthier, Sabine, Bruns, Alessandra, Carreira, Patricia, Chaigne, Benjamin, Chung, Lorinda, Correia, Chase, Denton, Christopher, Domsic, Robyn, Dunne, James V., Dunogue, Bertrand, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Hatron, Pierre-Yves, Herrick, Ariane L., Hoa, Sabrina, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Launay, David, Manning, Joanne, Marie, Isabelle, Martin, Maria, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Sobanski, Vincent, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Ayala, Mara Cañedo, Carboni-Jiménez, Andrea, Gagarine, Maria, Nordlund, Julia, Østbø, Nora, Rice, Danielle B., Turner, Kimberly A., Culos-Reed, Nicole, Dyas, Laura, Bustamante, Laura, Duchek, Delaney, Ellis, Kelsey
Published in Journal of psychosomatic research (01.01.2021)
Published in Journal of psychosomatic research (01.01.2021)
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Journal Article
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
Dougherty, Dane H, Kwakkenbos, Linda, Carrier, Marie-Eve, Salazar, Gloria, Assassi, Shervin, Baron, Murray, Bartlett, Susan J, Furst, Daniel E, Gottesman, Karen, van den Hoogen, Frank, Malcarne, Vanessa L, Mouthon, Luc, Nielson, Warren R, Poiraudeau, Serge, Sauvé, Maureen, Boire, Gilles, Bruns, Alessandra, Chung, Lorinda, Denton, Christopher, Dunne, James V, Fortin, Paul, Frech, Tracy, Gill, Anna, Gordon, Jessica, Herrick, Ariane L, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R, Jones, Niall, Kafaja, Suzanne, Larché, Maggie, Manning, Joanne, Pope, Janet, Spiera, Robert, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Thombs, Brett D, Mayes, Maureen D
Published in Rheumatology (Oxford, England) (01.09.2018)
Published in Rheumatology (Oxford, England) (01.09.2018)
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Journal Article
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
Thombs, Brett D., Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Patten, Scott, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea, Fortuné, Catherine, Gietzen, Amy, Guillot, Geneviève, Lewis, Nancy, Richard, Michelle, Sauvé, Maureen, Welling, Joep, Fligelstone, Kim, Gottesman, Karen, Leite, Catarina, Pérez, Elisabet, Baron, Murray, Malcarne, Vanessa, Mayes, Maureen D., Nielson, Warren R., Riggs, Robert, Assassi, Shervin, Ells, Carolyn, van den Ende, Cornelia, Frech, Tracy, Harel, Daphna, Hinchcliff, Monique, Hudson, Marie, Johnson, Sindhu R., Larche, Maggie, Nguyen, Christelle, Pope, Janet, Rannou, François, Reyna, Tatiana Sofia Rodriguez, Schouffoer, Anne A., Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Bruns, Alessandra, Carreira, Patricia, Chaigne, Benjamin, Chung, Lorinda, Correia, Chase, Denton, Christopher, Dunne, James V., Dunogue, Bertrand, Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Hatron, Pierre-Yves, Herrick, Ariane L., Hoa, Sabrina, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Launay, David, Manning, Joanne, Marie, Isabelle, Martin, Maria, Mekinian, Arsene, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Proudman, Susanna, Régent, Alexis, Rivière, Sébastien, Robinson, David, Rodriguez, Esther, Roux, Sophie, Sobanski, Vincent, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Wilcox, Pearce, Ayala, Mara Cañedo, Carboni-Jiménez, Andrea, Gagarine, Maria, Nordlund, Julia, Østbø, Nora, Rice, Danielle B., Turner, Kimberly A., Culos-Reed, Nicole, Dyas, Laura, El-Baalbaki, Ghassan, Hebblethwaite, Shannon, Bustamante, Laura, Duchek, Delaney, Ellis, Kelsey
Published in Journal of psychosomatic research (01.12.2020)
Published in Journal of psychosomatic research (01.12.2020)
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Journal Article
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients
Thombs, Brett D., Kwakkenbos, Linda, Carrier, Marie-Eve, Bourgeault, Angelica, Tao, Lydia, Harb, Sami, Gagarine, Maria, Rice, Danielle, Bustamante, Laura, Neupane, Dipika, Carboni-Jiménez, Andrea, Henry, Richard S., Krishnan, Ankur, Sun, Ying, He, Chen, Turner, Kimberly A., Benedetti, Andrea, Culos-Reed, Nicole, El-Baalbaki, Ghassan, Hebblethwaite, Shannon, Bartlett, Susan J., Dyas, Laura, Varga, John, Fortuné, Catherine, Nielsen, Karen, Richard, Michelle, Welling, Joep, Baron, Murray, Furst, Daniel E., Gottesman, Karen, Malcarne, Vanessa, Mayes, Maureen D., Mouthon, Luc, Nielson, Warren R., Wigley, Fredrick, Assassi, Shervin, Boutron, Isabelle, Ells, Carolyn, Fligelstone, Kim, Frech, Tracy, Harel, Daphna, Hudson, Marie, Johnson, Sindhu R., Leite, Catarina, Nguyen, Christelle, Pope, Janet, Suarez-Almazor, Maria E., Agard, Christian, Albert, Alexandra, André, Marc, Arsenault, Guylaine, Benzidia, Ilham, Bernstein, Elana J., Berthier, Sabine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Carreira, Patricia, Chaigne, Benjamin, Chung, Lorinda, Cohen, Pascal, Correia, Chase, Dagenais, Pierre, Domsic, Robyn, Dubois, Sandrine, Dunne, James V., Farge-Bancel, Dominique, Fortin, Paul R., Gordon, Jessica, Granel-Rey, Brigitte, Gyger, Genevieve, Hachulla, Eric, Hatron, Pierre-Yves, Herrick, Ariane L., Hoa, Sabrina, Jones, Niall, de B. Fernandes, Artur Jose, Kafaja, Suzanne, Khalidi, Nader, Lambert, Marc, Launay, David, Maillard, Hélène, Maltez, Nancy, Manning, Joanne, Martin, Maria, Martin, Thierry, Melchor, Sheila, Nikpour, Mandana, Olagne, Louis, Régent, Alexis, Rivière, Sébastien, Rodriguez, Esther, Smith, Doug, Spiera, Robert, Steen, Virginia, Stevens, Wendy, Thorne, Carter, Varga, John, Ayala, Mara Cañedo, Ostbo, Nora
Published in Journal of psychosomatic research (01.08.2020)
Published in Journal of psychosomatic research (01.08.2020)
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Journal Article
Validation of the Social Appearance Anxiety Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study
Mills, Sarah D., Kwakkenbos, Linda, Carrier, Marie‐Eve, Gholizadeh, Shadi, Fox, Rina S., Jewett, Lisa R., Gottesman, Karen, Roesch, Scott C., Thombs, Brett D., Malcarne, Vanessa L., Baron, Murray, Bartlett, Susan J., Ells, Carolyn, Hudson, Marie, Jang, Yeona, Körner, Annett, Furst, Dan, Kafaja, Suzanne, Hoogen, Frank, Mouthon, Luc, Nielson, Warren R., Sauve, Maureen, Fortune, Catherine, Nielsen, Karen, Wigley, Fredrick, Boutron, Isabelle, Ende, Cornelia, Fligelstone, Kim, Frech, Tracy, Godard, Dominique, Harel, Daphna, Johnson, Sindhu R., Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Rodriguez Reyna, Tatiana Sofia, Schouffoer, Anne A., Levis, Brooke, Suarez‐Almazor, Maria E., Welling, Joep, Wong‐Rieger, Durhane, Agard, Christian, Albert, Alexandra, Ikic, Alena, André, Marc, Smets, Perrine, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Benmostefa, Nouria, Chaigne, Benjamin, Cohen, Pascal, Paule, Romain, Régent, Alexis, Terrier, Benjamin, Benzidia, Ilham, Farge‐Bancel, Dominique, Hij, Adrian, Berthier, Sabine, Carreira, Patricia, Martin, Maria, Melchor, Sheila, Rodriguez, Esther, Chung, Lorinda, Denton, Christopher, Gill, Anna, Dunne, James V., Wilcox, Pearce, Fortin, Paul R., Gordon, Jessica, Spiera, Robert, Granel‐Rey, Brigitte, Grange, Claire, Hachulla, Eric, Hatron, Pierre‐Yves, Lambert, Marc, Launay, David, Sobanski, Vincent, Herrick, Ariane L., Korman, Benjamin, Varga, John, Jones, Niall, Martin, Thierry, Maurier, François, Mekinian, Arsene, Rivière, Sébastien, Robinson, David, Smith, Doug, Sutton, Evelyn, Thorne, Carter, Pepin, Mia R., Turner, Kimberly
Published in Arthritis care & research (2010) (01.10.2018)
Published in Arthritis care & research (2010) (01.10.2018)
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Journal Article
Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study
Riehm, Kira E., Kwakkenbos, Linda, Carrier, Marie‐Eve, Bartlett, Susan J., Malcarne, Vanessa L., Mouthon, Luc, Nielson, Warren R., Poiraudeau, Serge, Nielsen, Karen, Baron, Murray, Frech, Tracy, Hudson, Marie, Pope, Janet, Sauve, Maureen, Suarez‐Almazor, Maria E., Wigley, Fredrick M., Thombs, Brett D., Furst, Dan, Gottesman, Karen, Mayes, Maureen D., Riggs, Robert, van den Hoogen, Frank, Assassi, Shervin, Boutron, Isabelle, Costa Maia, Angela, El‐Baalbaki, Ghassan, Ells, Carolyn, van den Ende, Cornelia H. M., Fligelstone, Kim, Fortune, Catherine, Godard, Dominique, Harel, Daphna, Impens, Ann, Jang, Yeona, Johnson, Sindhu R., Tyrell Kennedy, Ann, Körner, Annett, Leite, Catarina, Marra, Carlo, Poole, Janet L., Portales, Alexandra, Sofia Rodriguez Reyna, Tatiana, Schouffoer, Anne A., Steele, Russell J., Welling, Joep, Wong‐Rieger, Durhane, Albert, Alexandra, Arsenault, Guylaine, Carreira, Patricia, Chung, Lorinda, Dagenais, Pierre, Denton, Christopher, Domsic, Robyn, Dunne, James V., Fortin, Paul, Gordon, Jessica, Gyger, Genevieve, Herrick, Ariane, Hinchcliff, Monique, Jones, Niall, Fernandes, Artur Jose de B., Kafaja, Suzanne, Khalidi, Nader, Korman, Benjamin, Larche, Maggie, Liang, Patrick, Masetto, Ariel, Robinson, David, Roux, Sophie, Schiopu, Elena, Smith, Doug, Spiera, Robert, Steen, Virginia, Thorne, Carter, Varga, John, Wilcox, Pearce, Delisle, Vanessa C., Fox, Rina S., Gholizadeh, Shadi, Fedoruk, Claire, Jewett, Lisa R., Levis, Brooke, Milette, Katherine, Pepin, Mia R., Mills, Sarah D.
Published in Arthritis care & research (2010) (01.08.2016)
Published in Arthritis care & research (2010) (01.08.2016)
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Journal Article
Using Optimal Test Assembly Methods for Shortening Patient‐Reported Outcome Measures: Development and Validation of the Cochin Hand Function Scale‐6: A Scleroderma Patient‐Centered Intervention Network Cohort Study
Levis, Alexander W., Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie‐Eve, Mouthon, Luc, Poiraudeau, Serge, Bartlett, Susan J., Khanna, Dinesh, Malcarne, Vanessa L., Sauve, Maureen, van den Ende, Cornelia H. M., Poole, Janet L., Schouffoer, Anne A., Welling, Joep, Thombs, Brett D., Baron, Murray, Ells, Carolyn, Jang, Yeona, Steele, Russell J., Furst, Dan, Kafaja, Suzanne, Gottesman, Karen, van den Hoogen, Frank, Mayes, Maureen D., Assassi, Shervin, Nielson, Warren R., Riggs, Robert, Wigley, Fredrick, Boutron, Isabelle, Maia, Angela Costa, Leite, Catarina, El‐Baalbaki, Ghassan, Persmann, Jennifer, Fligelstone, Kim, Fortune, Catherine, Nielsen, Karen, Frech, Tracy, Godard, Dominique, Hudson, Marie, Gyger, Genevieve, Delisle, Vanessa C., Jewitt, Lisa R., Levis, Brooke, Milette, Katherine, Impens, Ann, Johnson, Sindhu R., Kennedy, Ann Tyrell, Larche, Maggie, Khalidi, Nader, Marra, Carlo, Pope, Janet, Portales, Alexandra, Reyna, Tatiana Sofia Rodriguez, Suarez‐Almazor, Maria E., Wong‐Rieger, Durhane, Albert, Alexandra, Fortin, Paul, Ikic, Alena, Arsenault, Guylaine, Bissonnette, Lyne, Boire, Gilles, Bruns, Alessandra, Dagenais, Pierre, Fernandes, Artur Jose de B., Liang, Patrick, Masetto, Ariel, Roux, Sophie, Carreira, Patricia, Chung, Lorinda, Denton, Christopher, Gill, Anna, Domsic, Robyn, Dunne, James V., Wilcox, Pearce, Gordon, Jessica, Spiera, Robert, Herrick, Ariane L., Hinchcliff, Monique, Korman, Benjamin, Varga, John, Jones, Niall, Manning, Joanne, Robinson, David, Schiopu, Elena, Smith, Doug, Steen, Virginia, Sutton, Evelyn, Thorne, Carter, Fedoruk, Claire, Pepin, Mia R., Fox, Rina S., Gholizadeh, Shadi, Mills, Sarah D.
Published in Arthritis care & research (2010) (01.11.2016)
Published in Arthritis care & research (2010) (01.11.2016)
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Journal Article
Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort
Harel, Daphna, Mills, Sarah D, Kwakkenbos, Linda, Carrier, Marie-Eve, Nielsen, Karen, Portales, Alexandra, Bartlett, Susan J, Malcarne, Vanessa L, Thombs, Brett D
Published in BMJ open (22.02.2019)
Published in BMJ open (22.02.2019)
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Journal Article
Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
Jewett, Lisa R, Kwakkenbos, Linda, Carrier, Marie-Eve, Malcarne, Vanessa L, Bartlett, Susan J, Furst, Daniel E, Gottesman, Karen, Mayes, Maureen D, Assassi, Shervin, Harcourt, Diana, Williamson, Heidi, Johnson, Sindhu R, Körner, Annett, Steen, Virginia, Fox, Rina S, Gholizadeh, Shadi, Mills, Sarah D, Molnar, Jacqueline C, Rice, Danielle B, Thombs, Brett D
Published in Clinical and experimental rheumatology (01.09.2016)
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Published in Clinical and experimental rheumatology (01.09.2016)
Journal Article
Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): study protocol
Carrier, Marie-Eve, Kwakkenbos, Linda, Boutron, Isabelle, Welling, Joep, Sauve, Maureen, Ende, Cornelia van den, Schouffoer, Anne A., Hudson, Marie, Maia, Ângela, Leite, Catarina, SPIN Investigators
Published in Journal of scleroderma and related disorders (01.02.2018)
Published in Journal of scleroderma and related disorders (01.02.2018)
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Journal Article