Available, accessible, aware, appropriate, and acceptable: a strategy to improve participation of teenagers and young adults in cancer trials
Fern, Lorna A, PhD, Lewandowski, Jennifer A, MS, Coxon, Katy M, PhD, Whelan, Jeremy, Prof
Published in The lancet oncology (01.07.2014)
Published in The lancet oncology (01.07.2014)
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Journal Article
The support and information needs of adolescents and young adults with cancer when active treatment ends
Lea, Sarah, Martins, Ana, Fern, Lorna A, Bassett, Matthew, Cable, Maria, Doig, Gary, Morgan, Sue, Soanes, Louise, Whelan, Michael, Taylor, Rachel M
Published in BMC cancer (28.07.2020)
Published in BMC cancer (28.07.2020)
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Journal Article
Young people’s opinions of cancer care in England: the BRIGHTLIGHT cohort
Hughes, Luke, Fern, Lorna A, Whelan, Jeremy S, Taylor, Rachel M, Study Group, BRIGHTLIGHT
Published in BMJ open (20.09.2023)
Published in BMJ open (20.09.2023)
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Journal Article
Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study
Taylor, Rachel M, Fern, Lorna A, Barber, Julie, Alvarez-Galvez, Javier, Feltbower, Richard, Lea, Sarah, Martins, Ana, Morris, Stephen, Hooker, Louise, Gibson, Faith, Raine, Rosalind, Stark, Dan P, Whelan, Jeremy
Published in BMJ open (26.11.2020)
Published in BMJ open (26.11.2020)
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Journal Article
Fear of Cancer Recurrence in Patients with Sarcoma in the United Kingdom
Petrella, Anika, Storey, Lesley, Hulbert-Williams, Nicholas J, Fern, Lorna A, Lawal, Maria, Gerrand, Craig, Windsor, Rachael, Woodford, Julie, Bradley, Jennie, O'Sullivan, Hatty, Wells, Mary, Taylor, Rachel M
Published in Cancers (01.02.2023)
Published in Cancers (01.02.2023)
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Journal Article
Reporting the whole story: Analysis of the ‘out‐of‐scope’ questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey
Gibson, Faith, Fern, Lorna A., Phillips, Bob, Gravestock, Helen, Malik, Sonia, Callaghan, Amy, Dyker, Karen, Groszmann, Mike, Hamrang, Leila, Hough, Rachael, McGeachy, Demi, Morgan, Sue, Smith, Sam, Upadhyaya, Sheela, Veitch, Helen, Williamson, Max, Whelan, Jeremy, Aldiss, Susie
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2021)
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2021)
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Journal Article
Patients' Experiences of a Sarcoma Diagnosis: A Process Mapping Exercise of Diagnostic Pathways
Martin, Sam, Clark, Sigrún Eyrúnardóttir, Gerrand, Craig, Gilchrist, Katie, Lawal, Maria, Maio, Laura, Martins, Ana, Storey, Lesley, Taylor, Rachel M, Wells, Mary, Whelan, Jeremy S, Windsor, Rachael, Woodford, Julie, Vindrola-Padros, Cecilia, Fern, Lorna A
Published in Cancers (01.08.2023)
Published in Cancers (01.08.2023)
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Journal Article
A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing
Woodford, Julie, Taylor, Rachel M., Windsor, Rachael, Onasanya, Maria, Gerrand, Craig, Bennister, Lindsey, Wells, Mary, Martins, Ana, Fern, Lorna A., Storey, Lesley, Whelan, Jeremy
Published in Complexity (New York, N.Y.) (2019)
Published in Complexity (New York, N.Y.) (2019)
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Journal Article
The Sarcoma Assessment Measure (SAM): Preliminary Psychometric Validation of a Novel Patient-Reported Outcome Measure
Hulbert-Williams, Lee, Hulbert-Williams, Nicholas J, Martins, Ana, Storey, Lesley, Bradley, Jennie, O'Sullivan, Hatty, Fern, Lorna A, Lawal, Maria, Windsor, Rachael, Gerrand, Craig, Whelan, Jeremy S, Bennister, Lindsey, Wells, Mary, Taylor, Rachel M
Published in Cancers (01.03.2024)
Published in Cancers (01.03.2024)
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Journal Article
Healthcare staff well-being and use of support services during COVID-19: a UK perspective
Petrella, Anika R, Hughes, Luke, Fern, Lorna A, Monaghan, Lisa, Hannon, Benjamin, Waters, Adam, Taylor, Rachel M
Published in General psychiatry (22.06.2021)
Published in General psychiatry (22.06.2021)
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Journal Article
Patient and public involvement to inform priorities and practice for research using existing healthcare data for children's and young people's cancers
Hughes, Nicola F, Fern, Lorna A, Polanco, Angela, Carrigan, Chris, Feltbower, Richard G, Gamble, Ashley, Connearn, Emily, Lopez, Angela, Bisci, Ellen, Pritchard-Jones, Kathy
Published in Research involvement and engagement (29.08.2023)
Published in Research involvement and engagement (29.08.2023)
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Journal Article
Specialist cancer services for teenagers and young adults in England: BRIGHTLIGHT research programme
Taylor, Rachel M, Fern, Lorna A, Barber, Julie, Gibson, Faith, Lea, Sarah, Patel, Nishma, Morris, Stephen, Alvarez-Galvez, Javier, Feltbower, Richard, Hooker, Louise, Martins, Ana, Stark, Dan, Raine, Rosalind, Whelan, Jeremy S
Published in Programme grants for applied research (01.11.2021)
Published in Programme grants for applied research (01.11.2021)
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Journal Article
BRIGHTLIGHT researchers as 'dramaturgs': creating There is a Light from complex research data
Taylor, Rachel M, Lobel, Brian, Thompson, Keisha, Onashile, Adura, Croasdale, Mark, Hall, Nathaniel, Gibson, Faith, Martins, Ana, Wright, David, Morgan, Sue, Whelan, Jeremy S, Fern, Lorna A
Published in Research involvement and engagement (10.08.2020)
Published in Research involvement and engagement (10.08.2020)
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Journal Article
Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort
Forster, Alice S, Herbert, Annie, Koo, Minjoung Monica, Taylor, Rachel M, Gibson, Faith, Whelan, Jeremy S, Lyratzopoulos, Georgios, Fern, Lorna A
Published in British journal of cancer (01.06.2022)
Published in British journal of cancer (01.06.2022)
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Journal Article
Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)
Martins, Ana, Bennister, Lindsey, Fern, Lorna A., Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S., Windsor, Rachael, Woodford, Julie, Taylor, Rachel M.
Published in Quality of life research (01.08.2020)
Published in Quality of life research (01.08.2020)
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Journal Article
Exploring Young People's Experience of Ending Active Cancer Treatment: When the "Little Cancer Treatment Bubble" Pops
Lea, Sarah, Martins, Ana, Cable, Maria, Fern, Lorna A, Morgan, Sue, Soanes, Louise, Whelan, Michael, Taylor, Rachel M
Published in Cancer nursing (01.07.2021)
Published in Cancer nursing (01.07.2021)
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Journal Article
A Qualitative Study of the Factors Influencing Patients' Experience of Soft Tissue Sarcoma in the United Kingdom
Martins, Ana, Bennister, Lindsey, Fern, Lorna A, Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S, Windsor, Rachael, Woodford, Julie, Taylor, Rachel M
Published in Cancer nursing (01.03.2024)
Published in Cancer nursing (01.03.2024)
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