Available, accessible, aware, appropriate, and acceptable: a strategy to improve participation of teenagers and young adults in cancer trials
Fern, Lorna A, PhD, Lewandowski, Jennifer A, MS, Coxon, Katy M, PhD, Whelan, Jeremy, Prof
Published in The lancet oncology (01.07.2014)
Published in The lancet oncology (01.07.2014)
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Journal Article
Associations between diagnostic time intervals and health-related quality of life, clinical anxiety and depression in adolescents and young adults with cancer: cross-sectional analysis of the BRIGHTLIGHT cohort
Forster, Alice S., Herbert, Annie, Koo, Minjoung Monica, Taylor, Rachel M., Gibson, Faith, Whelan, Jeremy S., Lyratzopoulos, Georgios, Fern, Lorna A.
Published in British journal of cancer (01.06.2022)
Published in British journal of cancer (01.06.2022)
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Journal Article
The support and information needs of adolescents and young adults with cancer when active treatment ends
Lea, Sarah, Martins, Ana, Fern, Lorna A, Bassett, Matthew, Cable, Maria, Doig, Gary, Morgan, Sue, Soanes, Louise, Whelan, Michael, Taylor, Rachel M
Published in BMC cancer (28.07.2020)
Published in BMC cancer (28.07.2020)
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Journal Article
Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)
Martins, Ana, Bennister, Lindsey, Fern, Lorna A., Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S., Windsor, Rachael, Woodford, Julie, Taylor, Rachel M.
Published in Quality of life research (01.08.2020)
Published in Quality of life research (01.08.2020)
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Journal Article
Young people’s opinions of cancer care in England: the BRIGHTLIGHT cohort
Hughes, Luke, Fern, Lorna A, Whelan, Jeremy S, Taylor, Rachel M, Study Group, BRIGHTLIGHT
Published in BMJ open (20.09.2023)
Published in BMJ open (20.09.2023)
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Journal Article
Exploring Young People's Experience of Ending Active Cancer Treatment: When the "Little Cancer Treatment Bubble" Pops
Lea, Sarah, Martins, Ana, Cable, Maria, Fern, Lorna A, Morgan, Sue, Soanes, Louise, Whelan, Michael, Taylor, Rachel M
Published in Cancer nursing (01.07.2021)
Published in Cancer nursing (01.07.2021)
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Journal Article
A Qualitative Study of the Factors Influencing Patients' Experience of Soft Tissue Sarcoma in the United Kingdom
Martins, Ana, Bennister, Lindsey, Fern, Lorna A, Gerrand, Craig, Onasanya, Maria, Storey, Lesley, Wells, Mary, Whelan, Jeremy S, Windsor, Rachael, Woodford, Julie, Taylor, Rachel M
Published in Cancer nursing (01.03.2024)
Published in Cancer nursing (01.03.2024)
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Journal Article
The art of age-appropriate care: reflecting on a conceptual model of the cancer experience for teenagers and young adults
Fern, Lorna A, Taylor, Rachel M, Whelan, Jeremy, Pearce, Susie, Grew, Tom, Brooman, Katie, Starkey, Carol, Millington, Hannah, Ashton, James, Gibson, Faith
Published in Cancer nursing (01.09.2013)
Published in Cancer nursing (01.09.2013)
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Journal Article
A Critical Review of the Impact of Sarcoma on Psychosocial Wellbeing
Woodford, Julie, Taylor, Rachel M., Windsor, Rachael, Onasanya, Maria, Gerrand, Craig, Bennister, Lindsey, Wells, Mary, Martins, Ana, Fern, Lorna A., Storey, Lesley, Whelan, Jeremy
Published in Complexity (New York, N.Y.) (2019)
Published in Complexity (New York, N.Y.) (2019)
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Journal Article
Longitudinal cohort study of the impact of specialist cancer services for teenagers and young adults on quality of life: outcomes from the BRIGHTLIGHT study
Taylor, Rachel M, Fern, Lorna A, Barber, Julie, Alvarez-Galvez, Javier, Feltbower, Richard, Lea, Sarah, Martins, Ana, Morris, Stephen, Hooker, Louise, Gibson, Faith, Raine, Rosalind, Stark, Dan P, Whelan, Jeremy
Published in BMJ open (26.11.2020)
Published in BMJ open (26.11.2020)
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Journal Article
Research priorities for young people with cancer: a UK priority setting partnership with the James Lind Alliance
Aldiss, Susie, Fern, Lorna A, Phillips, Robert S, Callaghan, Amy, Dyker, Karen, Gravestock, Helen, Groszmann, Michael, Hamrang, Leila, Hough, Rachael, McGeachy, Demi, Morgan, Sue, Smith, Sam, Upadhyaya, Sheela, Veitch, Helen, Veitch, Lara, Williamson, Max, Whelan, Jeremy S, Gibson, Faith
Published in BMJ open (05.08.2019)
Published in BMJ open (05.08.2019)
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Journal Article
The BRIGHTLIGHT National Survey of the Impact of Specialist Teenage and Young Adult Cancer Care on Caregivers' Information and Support Needs
Martins, Ana, Alvarez-Galvez, Javier, Fern, Lorna A, Vindrola-Padros, Cecilia, Barber, Julie A, Gibson, Faith, Whelan, Jeremy S, Taylor, Rachel M
Published in Cancer nursing (01.05.2021)
Published in Cancer nursing (01.05.2021)
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Journal Article
Reporting the whole story: Analysis of the ‘out‐of‐scope’ questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey
Gibson, Faith, Fern, Lorna A., Phillips, Bob, Gravestock, Helen, Malik, Sonia, Callaghan, Amy, Dyker, Karen, Groszmann, Mike, Hamrang, Leila, Hough, Rachael, McGeachy, Demi, Morgan, Sue, Smith, Sam, Upadhyaya, Sheela, Veitch, Helen, Williamson, Max, Whelan, Jeremy, Aldiss, Susie
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2021)
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2021)
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Journal Article
Novel participatory methods of involving patients in research: naming and branding a longitudinal cohort study, BRIGHTLIGHT
Taylor, Rachel M, Mohain, Jasjeet, Gibson, Faith, Solanki, Anita, Whelan, Jeremy, Fern, Lorna A
Published in BMC medical research methodology (14.03.2015)
Published in BMC medical research methodology (14.03.2015)
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Journal Article
Diagnostic timeliness in adolescents and young adults with cancer: a cross-sectional analysis of the BRIGHTLIGHT cohort
Herbert, Annie, Lyratzopoulos, Georgios, Whelan, Jeremy, Taylor, Rachel M, Barber, Julie, Gibson, Faith, Fern, Lorna A
Published in The lancet child & adolescent health (01.03.2018)
Published in The lancet child & adolescent health (01.03.2018)
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Journal Article
Pre-Implementation Assessment of the Acceptability of Using Circulating microRNAs for Follow-Up of Malignant Germ-Cell Tumors
Fern, Lorna A., Greenwood, Michelle, Smith, Shievon, Brand, Susan, Coleman, Nicholas, Stark, Daniel P., Murray, Matthew J.
Published in Clinical genitourinary cancer (01.10.2021)
Published in Clinical genitourinary cancer (01.10.2021)
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