Co‐design of the EMBED‐Care Framework as an intervention to enhance shared decision‐making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study
Aworinde, Jesutofunmi, Evans, Catherine J., Gillam, Juliet, Ramsenthaler, Christina, Davies, Nathan, Ellis‐Smith, Clare
Published in Health expectations : an international journal of public participation in health care and health policy (01.02.2024)
Published in Health expectations : an international journal of public participation in health care and health policy (01.02.2024)
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Journal Article
Service Delivery Models to Maximize Quality of Life for Older People at the End of Life: A Rapid Review
EVANS, CATHERINE J., ISON, LUCY, ELLIS-SMITH, CLARE, NICHOLSON, CAROLINE, COSTA, ALESSIA, OLUYASE, ADEJOKE O., NAMISANGO, EVE, BONE, ANNA E., BRIGHTON, LISA JANE, YI, DEOKHEE, COMBES, SARAH, BAJWAH, SABRINA, GAO, WEI, HARDING, RICHARD, ONG, PAUL, HIGGINSON, IRENE J., MADDOCKS, MATTHEW
Published in The Milbank quarterly (01.03.2019)
Published in The Milbank quarterly (01.03.2019)
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Journal Article
Empowering Better End‐of‐Life Dementia Care (EMBED‐Care): A mixed methods protocol to achieve integrated person‐centred care across settings
Sampson, Elizabeth L., Anderson, Janet E., Candy, Bridget, Davies, Nathan, Ellis‐Smith, Clare, Gola, Anna, Harding, Richard, Kenten, Charlotte, Kupeli, Nuriye, Mead, Simon, Moore, Kirsten J., Omar, Rumana Z., Sleeman, Katherine E., Stewart, Robert, Ward, Jane, Warren, Jason D., Evans, Catherine J.
Published in International journal of geriatric psychiatry (01.08.2020)
Published in International journal of geriatric psychiatry (01.08.2020)
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Journal Article
How do person‐centered outcome measures enable shared decision‐making for people with dementia and family carers?—A systematic review
Aworinde, Jesutofunmi, Ellis‐Smith, Clare, Gillam, Juliet, Roche, Moïse, Coombes, Lucy, Yorganci, Emel, Evans, Catherine J.
Published in Alzheimer's & dementia : translational research & clinical interventions (2022)
Published in Alzheimer's & dementia : translational research & clinical interventions (2022)
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Journal Article
Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure
Kane, Pauline M, Daveson, Barbara A, Ryan, Karen, Ellis-Smith, Clare I, Mahon, Niall G, McAdam, Brendan, McQuilllan, Regina, Tracey, Cecelia, Howley, Christine, O’Gara, Geraldine, Raleigh, Caroline, Higginson, Irene J, Koffman, Jonathan, Murtagh, Fliss E M
Published in BMJ supportive & palliative care (01.12.2017)
Published in BMJ supportive & palliative care (01.12.2017)
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Journal Article
What are the barriers and facilitators to advance care planning with older people in long-term care facilities? A qualitative study
Zhou, Yuxin, Wang, Ariel, Braybrook, Debbie, Ellis-Smith, Clare, Feng, Haixia, Gong, Ni, Zhou, Zhi, Harding, Richard
Published in Journal of clinical nursing (20.02.2024)
Published in Journal of clinical nursing (20.02.2024)
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Journal Article
Co-Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED-Care Framework
Davies, Nathan, Sampson, Elizabeth L, Aworinde, Jesutofunmi, Gillam, Juliet, Kenten, Charlotte, Moore, Kirsten, Phillips, Bethan, Harvey, Catherine, Anderson, Janet, Ward, Jane, Evans, Catherine J, Ellis-Smith, Clare
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2024)
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2024)
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Journal Article
How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem
Ellis-Smith, Clare, Higginson, Irene J, Daveson, Barbara A, Henson, Lesley A, Evans, Catherine J
Published in PloS one (11.07.2018)
Published in PloS one (11.07.2018)
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Journal Article
Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study
Kane, Pauline M, Ellis-Smith, Clare I, Daveson, Barbara A, Ryan, Karen, Mahon, Niall G, McAdam, Brendan, McQuillan, Regina, Tracey, Cecelia, Howley, Christine, O’Gara, Geraldine, Raleigh, Caroline, Higginson, Irene J, Murtagh, Fliss EM, Koffman, Jonathan
Published in Palliative medicine (01.01.2018)
Published in Palliative medicine (01.01.2018)
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Journal Article
Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations
Tunnard, India, Yi, Deokhee, Ellis-Smith, Clare, Dawkins, Marsha, Higginson, Irene J, Evans, Catherine J
Published in BMC geriatrics (14.10.2021)
Published in BMC geriatrics (14.10.2021)
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Journal Article
Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia
Ellis-Smith, Clare, Evans, Catherine J, Murtagh, Fliss EM, Henson, Lesley A, Firth, Alice M, Higginson, Irene J, Daveson, Barbara A
Published in Palliative medicine (01.07.2017)
Published in Palliative medicine (01.07.2017)
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Journal Article
A collaborative approach in dementia care to improve clinical effectiveness and priorities for research through audit
Kinley, Julie, Ellis-Smith, Clare, Hurt, Michael, McIvor, Karen, Evans, Catherine J
Published in International journal of palliative nursing (02.12.2019)
Published in International journal of palliative nursing (02.12.2019)
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Journal Article
Co-design of a theory-based implementation plan for a holistic eHealth assessment and decision support framework for people with dementia in care homes
Gillam, Juliet, Evans, Catherine, Aworinde, Jesutofunmi, Ellis-Smith, Clare, Ross, Jamie, Davies, Nathan
Published in Digital health (01.01.2023)
Published in Digital health (01.01.2023)
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Journal Article
Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools
Ellis-Smith, Clare, Tunnard, India, Dawkins, Marsha, Gao, Wei, Higginson, Irene J., Evans, Catherine J., Ellis-Smith, Yi, Gao, Norton, Marshall, Banerjee, Goodman, Higginson, Banerjee, Sube, Ellis-Smith, Clare, Goodman, Claire, Maddocks, Matthew, Norton, Christine, Seamark, David, Vincent, Colin, Wei, Gao, Yi, Deokhee
Published in BMC palliative care (22.10.2021)
Published in BMC palliative care (22.10.2021)
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Journal Article
Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review
Bayly, Joanne, Bone, Anna E, Ellis-Smith, Clare, Tunnard, India, Yaqub, Shuja, Yi, Deokhee, Nkhoma, Kennedy B, Cook, Amelia, Combes, Sarah, Bajwah, Sabrina, Harding, Richard, Nicholson, Caroline, Normand, Charles, Ahuja, Shalini, Turrillas, Pamela, Kizawa, Yoshiyuki, Morita, Tatsuya, Nishiyama, Nanako, Tsuneto, Satoru, Ong, Paul, Higginson, Irene J, Evans, Catherine J, Maddocks, Matthew
Published in BMJ open (01.12.2021)
Published in BMJ open (01.12.2021)
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Journal Article
The real-world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers
Daveson, Barbara A, Harding, Richard, Shipman, Cathy, Mason, Bruce L, Epiphaniou, Eleni, Higginson, Irene J, Ellis-Smith, Clare, Henson, Lesley, Munday, Dan, Nanton, Veronica, Dale, Jeremy R, Boyd, Kirsty, Worth, Allison, Barclay, Stephen, Donaldson, Anne, Murray, Scott
Published in PloS one (02.05.2014)
Published in PloS one (02.05.2014)
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Journal Article
Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy
Bradshaw, Andy, Ostler, Sophia, Goodman, Claire, Batkovskyte, Izabele, Ellis-Smith, Clare, Tunnard, India, Bone, Anna E, Barclay, Stephen, Vernon, Martin, Higginson, Irene J, Evans, Catherine J, Sleeman, Katherine E
Published in Frontiers in public health (14.03.2023)
Published in Frontiers in public health (14.03.2023)
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Journal Article
Emergency department attendance by patients with cancer in the last month of life: a systematic review and meta-analysis
Henson, Lesley, Dr, Gao, Wei, PhD, Higginson, Irene, Prof, Smith, Melinda, MSc, Davies, Joanna, MSc, Ellis-Smith, Clare, MSc, Daveson, Barbara, PhD
Published in The Lancet (British edition) (26.02.2015)
Published in The Lancet (British edition) (26.02.2015)
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Journal Article
Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review
Kishino, Megumi, Ellis-Smith, Clare, Afolabi, Oladayo, Koffman, Jonathan
Published in Palliative Medicine (01.03.2022)
Published in Palliative Medicine (01.03.2022)
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