Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium
Gutierrez, Amanda M, Robinson, Jill O, Outram, Simon M, Smith, Hadley S, Kraft, Stephanie A, Donohue, Katherine E, Biesecker, Barbara B, Brothers, Kyle B, Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A, Hoban, Hannah, Hsu, Rebecca L, Knight, Sara J, Koenig, Barbara A, Lewis, Katie L, Lich, Kristen Hassmiller, O'Daniel, Julianne M, Okuyama, Sonia, Tomlinson, Gail E, Waltz, Margaret, Wilfond, Benjamin S, Ackerman, Sara L, Majumder, Mary A
Published in Journal of clinical and translational science (2021)
Published in Journal of clinical and translational science (2021)
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Journal Article
“Is that something that should concern me?”: a qualitative exploration of parent understanding of their child’s genomic test results
Watnick, Dana, Odgis, Jacqueline A., Suckiel, Sabrina A., Gallagher, Katie M., Teitelman, Nehama, Donohue, Katherine E., Gelb, Bruce D., Kenny, Eimear E., Wasserstein, Melissa P., Horowitz, Carol R., Dolan, Siobhan M., Bauman, Laurie J.
Published in HGG advances (08.04.2021)
Published in HGG advances (08.04.2021)
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Journal Article
Pitfalls and challenges in genetic test interpretation: An exploration of genetic professionals experience with interpretation of results
Donohue, Katherine E., Gooch, Catherine, Katz, Alexander, Wakelee, Jessica, Slavotinek, Anne, Korf, Bruce R.
Published in Clinical genetics (01.05.2021)
Published in Clinical genetics (01.05.2021)
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Journal Article
Hope versus reality: Parent expectations of genomic testing
Donohue, Katherine E., Dolan, Siobhan M., Watnick, Dana, Gallagher, Katie M., Odgis, Jacqueline A., Suckiel, Sabrina A., Teitelman, Nehama, Gelb, Bruce D., Kenny, Eimear E., Wasserstein, Melissa P., Horowitz, Carol R., Bauman, Laurie J.
Published in Patient education and counseling (01.08.2021)
Published in Patient education and counseling (01.08.2021)
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Journal Article
A review and definition of ‘usual care’ in genetic counseling trials to standardize use in research
Biesecker, Barbara B., Lillie, Sarah E., Amendola, Laura M., Donohue, Katherine E., East, Kelly M., Foreman, Ann Katherine M., Gilmore, Marian J., Greve, Veronica, Liangolou, Billie, O'Daniel, Julianne M., Odgis, Jacqueline A., Rego, Shannon, Rolf, Bradley, Scollon, Sarah, Suckiel, Sabrina A., Zepp, Jamilyn, Joseph, Galen
Published in Journal of genetic counseling (01.02.2021)
Published in Journal of genetic counseling (01.02.2021)
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Journal Article
What guidance does HIPAA offer to providers considering familial risk notification and cascade genetic testing?
Henrikson, Nora B, Wagner, Jennifer K, Hampel, Heather, DeVore, Christopher, Shridhar, Nirupama, Williams, Janet L, Donohue, Katherine E, Kullo, Iftikhar, Prince, Anya E R
Published in Journal of law and the biosciences (01.01.2020)
Published in Journal of law and the biosciences (01.01.2020)
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Journal Article
Genomic Sequencing Results Disclosure in Diverse and Medically Underserved Populations: Themes, Challenges, and Strategies from the CSER Consortium
Suckiel, Sabrina A, O'Daniel, Julianne M, Donohue, Katherine E, Gallagher, Katie M, Gilmore, Marian J, Hendon, Laura G, Joseph, Galen, Lianoglou, Billie R, Mathews, Jennifer M, Norton, Mary E, Odgis, Jacqueline A, Poss, Alexis F, Rego, Shannon, Scollon, Sarah, Yip, Tiffany, Amendola, Laura M
Published in Journal of personalized medicine (13.03.2021)
Published in Journal of personalized medicine (13.03.2021)
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Journal Article
The NYCKidSeq project: study protocol for a randomized controlled trial incorporating genomics into the clinical care of diverse New York City children
Odgis, Jacqueline A, Gallagher, Katie M, Suckiel, Sabrina A, Donohue, Katherine E, Ramos, Michelle A, Kelly, Nicole R, Bertier, Gabrielle, Blackburn, Christina, Brown, Kaitlyn, Fielding, Lena, Lopez, Jessenia, Aguiniga, Karla Lopez, Maria, Estefany, Rodriguez, Jessica E, Sebastin, Monisha, Teitelman, Nehama, Watnick, Dana, Yelton, Nicole M, Abhyankar, Avinash, Abul-Husn, Noura S, Baum, Aaron, Bauman, Laurie J, Beal, Jules C, Bloom, Toby, Cunningham-Rundles, Charlotte, Diaz, George A, Dolan, Siobhan, Ferket, Bart S, Jobanputra, Vaidehi, Kovatch, Patricia, McDonald, Thomas V, McGoldrick, Patricia E, Rhodes, Rosamond, Rinke, Michael L, Robinson, Mimsie, Rubinstein, Arye, Shulman, Lisa H, Stolte, Christian, Wolf, Steven M, Yozawitz, Elissa, Zinberg, Randi E, Greally, John M, Gelb, Bruce D, Horowitz, Carol R, Wasserstein, Melissa P, Kenny, Eimear E
Published in Current controlled trials in cardiovascular medicine (14.01.2021)
Published in Current controlled trials in cardiovascular medicine (14.01.2021)
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Journal Article
Correction to: The NYCKidSeq project: study protocol for a randomized controlled trial incorporating genomics into the clinical care of diverse New York City children
Odgis, Jacqueline A, Gallagher, Katie M, Suckiel, Sabrina A, Donohue, Katherine E, Ramos, Michelle A, Kelly, Nicole R, Bertier, Gabrielle, Blackburn, Christina, Brown, Kaitlyn, Fielding, Lena, Lopez, Jessenia, Aguiniga, Karla Lopez, Maria, Estefany, Rodriguez, Jessica E, Sebastin, Monisha, Teitelman, Nehama, Watnick, Dana, Yelton, Nicole M, Abhyankar, Avinash, Abul-Husn, Noura S, Baum, Aaron, Bauman, Laurie J, Beal, Jules C, Bloom, Toby, Cunningham-Rundles, Charlotte, Diaz, George A, Dolan, Siobhan, Ferket, Bart S, Jobanputra, Vaidehi, Kovatch, Patricia, McDonald, Thomas V, McGoldrick, Patricia E, Rhodes, Rosamond, Rinke, Michael L, Robinson, Mimsie, Rubinstein, Arye, Shulman, Lisa H, Stolte, Christian, Wolf, Steven M, Yozawitz, Elissa, Zinberg, Randi E, Greally, John M, Gelb, Bruce D, Horowitz, Carol R, Wasserstein, Melissa P, Kenny, Eimear E
Published in Current controlled trials in cardiovascular medicine (16.02.2021)
Published in Current controlled trials in cardiovascular medicine (16.02.2021)
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Journal Article
The NYCKidSeq project: study protocol for a randomized controlled trial incorporating genomics into the clinical care of diverse New York City children
Odgis, Jacqueline A, Gallagher, Katie M, Suckiel, Sabrina A, Donohue, Katherine E, Ramos, Michelle A, Kelly, Nicole R, Bertier, Gabrielle, Blackburn, Christina, Brown, Kaitlyn, Fielding, Lena, Lopez, Jessenia, Karla Lopez Aguiniga, Estefany, Maria, Rodriguez, Jessica E, Sebastin, Monisha, Teitelman, Nehama, Watnick, Dana, Yelton, Nicole M, Abhyankar, Avinash, Abul-Husn, Noura S, Baum, Aaron, Bauman, Laurie J, Beal, Jules C, Bloom, Toby, Cunningham-Rundles, Charlotte, Diaz, George A, Dolan, Siobhan, Ferket, Bart S, Jobanputra, Vaidehi, Kovatch, Patricia, McDonald, Thomas V, McGoldrick, Patricia E, Rhodes, Rosamond, Rinke, Michael L, Robinson, Mimsie, Rubinstein, Arye, Shulman, Lisa H, Stolte, Christian, Wolf, Steven M, Yozawitz, Elissa, Zinberg, Randi E, Greally, John M, Gelb, Bruce D, Horowitz, Carol R, Wasserstein, Melissa P, Kenny, Eimear E
Published in Trials (17.11.2020)
Published in Trials (17.11.2020)
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