Enhanced Access and Parents' Preferred Contact for a Child's Chronic Condition
deJong, Neal A., MD, MPH, Dellon, Elisabeth P., MD, MPH, Vander Schaaf, Emily B., MD, MPH, Stiles, Alan D., MD, Carr, Rachael A., BA, Steiner, Michael J., MD, MPH
Published in The Journal of pediatrics (01.01.2017)
Published in The Journal of pediatrics (01.01.2017)
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Journal Article
Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) – study protocol for a multicentre randomised clinical trial
Lowers, Jane, Dellon, Elisabeth P, Stephenson, Anne, Arnold, Robert, Althouse, Andrew, Jeong, Kwonho, Dubin, Ethan, Soodalter, Jesse, Hovater, Cade, Bakitas, Marie, Goggin, Jessica, Hunt, William, Ladores, Sigrid, Curseen, Kimberly, Winter, Gretchen, Solomon, George, Ailon, Jonathan, Conrad, Douglas, Kavalieratos, Dio
Published in BMJ open respiratory research (01.09.2022)
Published in BMJ open respiratory research (01.09.2022)
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Journal Article
Caregiver Perspectives on Discussions About the Use of Intensive Treatments in Cystic Fibrosis
Dellon, Elisabeth P., MD, MPH, Shores, Mitchell D., BA, Nelson, Katherine I., MPH, Wolfe, Joanne, MD, MPH, Noah, Terry L., MD, Hanson, Laura C., MD, MPH
Published in Journal of pain and symptom management (01.12.2010)
Published in Journal of pain and symptom management (01.12.2010)
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Journal Article
Family Caregiver Perspectives on Symptoms and Treatments for Patients Dying From Complications of Cystic Fibrosis
Dellon, Elisabeth P., MD, MPH, Shores, Mitchell D., BA, Nelson, Katherine I., MPH, Wolfe, Joanne, MD, MPH, Noah, Terry L., MD, Hanson, Laura C., MD, MPH
Published in Journal of pain and symptom management (01.12.2010)
Published in Journal of pain and symptom management (01.12.2010)
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Journal Article
Cystic Fibrosis Foundation consensus guidelines for the care of individuals with advanced cystic fibrosis lung disease
Kapnadak, Siddhartha G., Dimango, Emily, Hadjiliadis, Denis, Hempstead, Sarah E., Tallarico, Erin, Pilewski, Joseph M., Faro, Albert, Albright, James, Benden, Christian, Blair, Shaina, Dellon, Elisabeth P., Gochenour, Daniel, Michelson, Peter, Moshiree, Baharak, Neuringer, Isabel, Riedy, Carl, Schindler, Teresa, Singer, Lianne G., Young, Dave, Vignola, Lauren, Zukosky, Joan, Simon, Richard H.
Published in Journal of cystic fibrosis (01.05.2020)
Published in Journal of cystic fibrosis (01.05.2020)
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Journal Article
Exploring perceptions of and decision‐making about CFTR modulators
Landess, Lee, Prieur, Mary G., Brown, Ashley R., Dellon, Elisabeth P.
Published in Pediatric pulmonology (01.06.2024)
Published in Pediatric pulmonology (01.06.2024)
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Journal Article
Symptoms and quality of life in adults with cystic fibrosis: A cross-sectional analysis of the InSPIRe:CF trial
Smirnova, Natalia, Lowers, Jane, Cammarata-Mouchtouris, Alexandre, Dellon, Elisabeth P, Fitzpatrick, Anne, Kavalieratos, Dio
Published in Journal of cystic fibrosis (08.03.2024)
Published in Journal of cystic fibrosis (08.03.2024)
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Journal Article
Prevalence of unmet pain and symptom management needs in adults with cystic fibrosis
Dubin, Ethan, Lowers, Jane, Dellon, Elisabeth P., Hempstead, Sarah, Faro, Albert, Tallarico, Erin, Fitzpatrick, Anne, Hunt, William R, Kavalieratos, Dio
Published in Journal of cystic fibrosis (01.03.2023)
Published in Journal of cystic fibrosis (01.03.2023)
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Journal Article
Enhancing care for individuals with advanced cystic fibrosis lung disease
Kapnadak, Siddhartha G., Ramos, Kathleen J., Dellon, Elisabeth P.
Published in Pediatric pulmonology (01.02.2021)
Published in Pediatric pulmonology (01.02.2021)
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Journal Article
Clinician perspectives on barriers and solutions to symptom management in cystic fibrosis
Smirnova, Natalia, Trandel, Elizabeth T, Dubin, Ethan, Lowers, Jane, Dellon, Elisabeth P, Hempstead, Sarah, Faro, Albert, Tallarico, Erin, Kavalieratos, Dio
Published in Journal of cystic fibrosis (01.11.2023)
Published in Journal of cystic fibrosis (01.11.2023)
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Journal Article
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines
Kavalieratos, Dio, Georgiopoulos, Anna M, Dhingra, Lara, Basile, Melissa J, Rabinowitz, Elliot, Hempstead, Sarah E, Faro, Albert, Dellon, Elisabeth P
Published in Journal of palliative medicine (01.01.2021)
Published in Journal of palliative medicine (01.01.2021)
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Journal Article
Elevated creatine phosphokinase and rhabdomyolysis associated with elexacaftor/tezacaftor/ivacaftor use in cystic fibrosis
McKinzie, Cameron J., Kam, Charissa W., Jones, Morgan C., Gifford, Laura B., Loughlin, Ceila E., Noah, Terry L., Shenoy, Vivek K., Dellon, Elisabeth P.
Published in Pediatric pulmonology (01.06.2024)
Published in Pediatric pulmonology (01.06.2024)
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Journal Article
Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders
Dellon, Elisabeth P, Basile, Melissa, Hobler, Mara R, Georgiopoulos, Anna M, Chen, Elaine, Goggin, Jessica, Goss, Christopher H, Hempstead, Sarah E, Faro, Albert, Kavalieratos, Dio
Published in Journal of palliative medicine (01.07.2020)
Published in Journal of palliative medicine (01.07.2020)
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Journal Article
Barriers of Acceptance to Hospice Care: a Randomized Vignette-Based Experiment
Trandel, Elizabeth T., Lowers, Jane, Bannon, Megan E., Moreines, Laura T., Dellon, Elisabeth P., White, Patrick, Cross, Sarah H., Quest, Tammie E., Lagnese, Keith, Krishnamurti, Tamar, Arnold, Robert M., Harrison, Krista L., Patzer, Rachel E., Wang, Li, Zarrabi, Ali John, Kavalieratos, Dio
Published in Journal of general internal medicine : JGIM (01.02.2023)
Published in Journal of general internal medicine : JGIM (01.02.2023)
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Journal Article
Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care
Dellon, Elisabeth P., Helms, Sarah W., Hailey, Claire E., Shay, Rosemary, Carney, Scott D., Schmidt, Howard Joel, Brown, David E., Prieur, Mary G.
Published in Pediatric pulmonology (01.09.2018)
Published in Pediatric pulmonology (01.09.2018)
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