Schooling experiences in children with long-gap esophageal atresia compared with children with esophageal atresia and primary anastomosis: a Swedish study
Dellenmark-Blom, M, Reilly, C, Öst, E, Örnö Ax, S, Svensson, J F, Kassa, A-M, Jönsson, L, Abrahamsson, K, Gatzinsky, V, Tollne, A M, Omling, E, Stenström, P, Engstrand Lilja, H
Published in Orphanet journal of rare diseases (07.08.2023)
Published in Orphanet journal of rare diseases (07.08.2023)
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Journal Article
Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective
Dellenmark-Blom, M., Chaplin, J. E., Jönsson, L., Gatzinsky, V., Quitmann, J. H., Abrahamsson, K.
Published in Child : care, health & development (01.09.2016)
Published in Child : care, health & development (01.09.2016)
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Journal Article
Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa-a pilot study
de Vos, C, Dellenmark-Blom, M, Sikwete, F M, Sidler, D, van Wyk, L, Goussard, P
Published in Diseases of the esophagus (03.07.2024)
Published in Diseases of the esophagus (03.07.2024)
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Journal Article
Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents
Kassa, A-M., Dellenmark-Blom, M., Thorsell Cederberg, J., Engvall, G., Engstrand Lilja, H.
Published in Quality of life research (01.04.2020)
Published in Quality of life research (01.04.2020)
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Journal Article
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
Dellenmark-Blom, M., Abrahamsson, K., Quitmann, J. H., Sommer, R., Witt, S., Dingemann, J., Flieder, S., Jönsson, L., Gatzinsky, V., Bullinger, M., Ure, B. M., Dingemann, C., Chaplin, J. E.
Published in Diseases of the esophagus (01.07.2017)
Published in Diseases of the esophagus (01.07.2017)
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Journal Article
The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach
Dellenmark-Blom, M, Chaplin, J E, Quitmann, J H, Jönsson, L, Gatzinsky, V, Dingemann, J, Abrahamsson, K
Published in Diseases of the esophagus (01.07.2019)
Published in Diseases of the esophagus (01.07.2019)
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Journal Article
Prevalence of mental health problems, associated factors, and health-related quality of life in children with long-gap esophageal atresia in Sweden
Dellenmark-Blom, Michaela, Ax, Sofie Örnö, Lilja, Helene Engstrand, Reilly, Colin, Svensson, Jan F., Kassa, Ann-Marie, Jönsson, Linus, Abrahamsson, Kate, Gatzinsky, Vladimir, Omling, Erik, Tollne, AnnaMaria, Stenström, Pernilla, Öst, Elin
Published in Journal of pediatric surgery (01.09.2023)
Published in Journal of pediatric surgery (01.09.2023)
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Journal Article
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the Field
Spivack, Olivia K C, Dellenmark-Blom, Michaela, Dingemann, Jens, Ten Kate, Chantal A, Wallace, Vuokko, Bramer, Wichor M, Quitmann, Julia H, Rietman, Andre
Published in European journal of pediatric surgery (01.04.2024)
Published in European journal of pediatric surgery (01.04.2024)
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Journal Article
Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature
Holmdahl, Gundela, Dellenmark-Blom, Michaela, Nordenskjöld, Agneta, Sjöström, Sofia
Published in European journal of pediatric surgery (01.06.2020)
Published in European journal of pediatric surgery (01.06.2020)
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Journal Article
Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study
Dellenmark-Blom, Michaela, ürnö Ax, Sofie, üst, Elin, Svensson, Jan F, Kassa, Ann-Marie, Jönsson, Linus, Abrahamsson, Kate, Gatzinsky, Vladimir, Stenström, Pernilla, Tollne, AnnaMaria, Omling, Erik, Engstrand Lilja, Helene
Published in Orphanet journal of rare diseases (20.06.2022)
Published in Orphanet journal of rare diseases (20.06.2022)
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Journal Article
Do screening instruments indicate elevated levels mental health difficulties in children born with an abdominal wall defect?
Persson, S, Reilly, C, Burgos, CM, Lilja, HE, Ost, E, Granstrom, AL, Wester, T, Fourtaka, A, Rietman, AB, Wallace, V, Quitmann, JH, Witt, S, Slater, G, Brendel, J, Dingemann, J, Dellenmark-Blom, M
Published in BRITISH JOURNAL OF SURGERY (2024)
Published in BRITISH JOURNAL OF SURGERY (2024)
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Conference Proceeding
PDB48 ASSESSING QUALITY OF LIFE IN SHORT STATURE YOUTH — THE QOLISSY PROJECT FOCUS GROUP AND COGNITIVE DEBRIEFING EXPERIENCE
Bullinger, M, Dellenmark Blom, M, Feigerlova, E, Herdman, M, Lunde, C, Mimoun, E, Pleil, A, Power, M, Quitmann, J, Rohenkohl, A, Sanz, D, Skoropadskaya, A, Wollmann, H, Chaplin, J
Published in Value in health (2010)
Published in Value in health (2010)
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Journal Article
CL180 - Qualité de vie des enfants de petite taille - Projet QoLISSY
Mimoun, E., Feigerlova, E., Quitmann, J., Skoropadskaya, A., Chaplin, J., Rohenkohl, A., Sanz, D., Dellenmark Blom, M., Herdman, M., Lunde, C., Pleil, A., Power, M., Wollmann, H., Tauber, M., Bullinger, M.
Published in Archives de pédiatrie : organe officiel de la Société française de pédiatrie (01.06.2010)
Published in Archives de pédiatrie : organe officiel de la Société française de pédiatrie (01.06.2010)
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Journal Article