Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study
Soto Jansson, Josefin, Bjurulf, Björn, Dellenmark Blom, Michaela, Hallböök, Tove, Reilly, Colin
Published in Epilepsy & behavior (01.07.2024)
Published in Epilepsy & behavior (01.07.2024)
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Journal Article
Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and needs
Soto Jansson, Josefin, Bjurulf, Björn, Dellenmark Blom, Michaela, Hallböök, Tove, Reilly, Colin
Published in Epilepsy & behavior (01.02.2024)
Published in Epilepsy & behavior (01.02.2024)
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Journal Article
Mortality rates, cause and risk factors in people with spina bifida, register‐based study over five decades
Andersson, Marie, Hadi, Lana, Dellenmark Blom, Michaela, Sillen, Ulla, Sjöström, Sofia, Arnell, Magdalena Vu Minh, Abrahamsson, Kate
Published in ACTA PAEDIATRICA (01.08.2024)
Published in ACTA PAEDIATRICA (01.08.2024)
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Journal Article
Linguistic and content validity of the Swedish version of the PedsQL™ gastrointestinal symptoms scales and symptoms module for paediatric patients
Bräutigam, Matilda, Dellenmark‐Blom, Michaela, Gatzinsky, Vladimir, Bergström, Jenny, Abrahamsson, Kate
Published in Acta Paediatrica (01.11.2021)
Published in Acta Paediatrica (01.11.2021)
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Journal Article
Health‐related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish–German focus group study
Witt, Stefanie, Dellenmark‐Blom, Michaela, Flieder, Sofie, Dingemann, Jens, Abrahamsson, Kate, Jönsson, Linus, Gatzinsky, Vladimir, Chaplin, John Eric, Ure, Benno, Dingemann, Carmen, Bullinger, Monika, Sommer, Rachel, Quitmann, Julia Hannah
Published in Child : care, health & development (01.01.2019)
Published in Child : care, health & development (01.01.2019)
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Journal Article
Macrophage Phenotype Is Associated With the Regenerative Response in Experimental Replacement of the Porcine Esophagus
Jönsson, Linus, Dellenmark Blom, Michaela, Friberg, Lars, Gatzinsky, Vladimir, Holmquist, Olof, Jennische, Eva, Sandin, Anders, Abrahamsson, Kate
Published in Artificial organs (01.10.2016)
Published in Artificial organs (01.10.2016)
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Journal Article
The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric performance
Bräutigam, Matilda, Abrahamsson, Kate, Gatzinsky, Vladimir, Saalman, Robert, Hadi, Lana, Nilsson, Suzanne, Dellenmark-Blom, Michaela
Published in ACTA PAEDIATRICA (02.08.2024)
Published in ACTA PAEDIATRICA (02.08.2024)
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Journal Article
Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study
Witt, Stefanie, Bloemeke, Janika, Bullinger, Monika, Dingemann, Jens, Dellenmark-Blom, Michaela, Quitmann, Julia
Published in BMC pediatrics (11.09.2019)
Published in BMC pediatrics (11.09.2019)
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Journal Article
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and Germany
Dellenmark-Blom, Michaela, Dingemann, Jens, Witt, Stefanie, Quitmann, Julia H, Jönsson, Linus, Gatzinsky, Vladimir, Chaplin, John E, Bullinger, Monika, Flieder, Sofie, Ure, Benno M, Dingemann, Carmen, Abrahamsson, Kate
Published in Journal of pediatric gastroenterology and nutrition (01.10.2018)
Published in Journal of pediatric gastroenterology and nutrition (01.10.2018)
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Journal Article
The association of feeding difficulties and generic health-related quality of life among children born with esophageal atresia
Örnö Ax, Sofie, Dellenmark-Blom, Michaela, Abrahamsson, Kate, Jönsson, Linus, Gatzinsky, Vladimir
Published in Orphanet journal of rare diseases (09.08.2023)
Published in Orphanet journal of rare diseases (09.08.2023)
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Journal Article
Navigating global collaboration: challenges faced by the international network on esophageal atresia
Gottrand, Frédéric, Krishnan, Usha, Widenmann, Anke, Blom, Michaela Dellenmark, Dall'Oglio, Luigi, Wijnen, Rene, van Wijk, Michiel, Fruithof, JoAnne, von Allmen, Daniel, Kovesi, Tom, Faure, Christophe
Published in Orphanet journal of rare diseases (21.08.2024)
Published in Orphanet journal of rare diseases (21.08.2024)
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Journal Article
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study
Witt, Stefanie, Dellenmark-Blom, Michaela, Kuckuck, Susanne, Dingemann, Jens, Abrahamsson, Kate, Dingemann, Carmen, Chaplin, John Eric, Ure, Benno, Bullinger, Monika, Gatzinsky, Vladimir, Jönsson, Linus, Quitmann, Julia Hannah
Published in Orphanet journal of rare diseases (06.03.2021)
Published in Orphanet journal of rare diseases (06.03.2021)
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Journal Article
Factors of family impact in a Swedish-German cohort of children born with esophageal atresia
Dellenmark-Blom, Michaela, Abrahamsson, Kate, Dingemann, Jens, Witt, Stefanie, Dingemann, Carmen, Jönsson, Linus, Gatzinsky, Vladimir, Bullinger, Monika, Ure, Benno M, Chaplin, John E, Quitmann, Julia H
Published in Orphanet journal of rare diseases (21.05.2022)
Published in Orphanet journal of rare diseases (21.05.2022)
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Journal Article
Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study
Dellenmark-Blom, Michaela, ürnö Ax, Sofie, üst, Elin, Svensson, Jan F, Kassa, Ann-Marie, Jönsson, Linus, Abrahamsson, Kate, Gatzinsky, Vladimir, Stenström, Pernilla, Tollne, AnnaMaria, Omling, Erik, Engstrand Lilja, Helene
Published in Orphanet journal of rare diseases (20.06.2022)
Published in Orphanet journal of rare diseases (20.06.2022)
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