COVID‐19 and children with cancer: Parents’ experiences, anxieties and support needs
Darlington, Anne‐Sophie E., Morgan, Jessica E., Wagland, Richard, Sodergren, Samantha C., Culliford, David, Gamble, Ashley, Phillips, Bob
Published in Pediatric Blood & Cancer (01.02.2021)
Published in Pediatric Blood & Cancer (01.02.2021)
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COVID‐19: Impact, experiences, and support needs of children and young adults with cystic fibrosis and parents
Collaço, Nicole, Legg, Julian, Day, Maria, Culliford, David, Campion, Anna, West, Carolyn, Darlington, Anne‐Sophie
Published in Pediatric Pulmonology (01.09.2021)
Published in Pediatric Pulmonology (01.09.2021)
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Rare use of patient-reported outcomes in childhood cancer clinical trials – a systematic review of clinical trial registries
Riedl, David, Rothmund, Maria, Darlington, Anne-Sophie, Sodergren, Samantha, Crazzolara, Roman, de Rojas, Teresa
Published in European journal of cancer (1990) (01.07.2021)
Published in European journal of cancer (1990) (01.07.2021)
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Parents' Experiences of Pediatric Palliative Care and the Impact on Long-Term Parental Grief
van der Geest, Ivana M.M., BSc, Darlington, Anne-Sophie E., PhD, Streng, Isabelle C., MSc, Michiels, Erna M.C., MD, PhD, Pieters, Rob, MD, PhD, van den Heuvel-Eibrink, Marry M., MD, PhD
Published in Journal of pain and symptom management (01.06.2014)
Published in Journal of pain and symptom management (01.06.2014)
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The social and physical environmental factors associated with the play of children living with life threatening/limiting conditions: A Q methodology study
Jasem, Zainab A., Lambrick, Danielle, Randall, Duncan C., Darlington, Anne‐Sophie
Published in Child : care, health & development (01.03.2022)
Published in Child : care, health & development (01.03.2022)
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Psychosocial consequences of surviving cancer diagnosed and treated in childhood versus in adolescence/young adulthood: A call for clearer delineation between groups
Darlington, Anne‐Sophie E., Wakefield, Claire E., Erp, Loes M. E., Graaf, Winette T. A., Cohn, Richard J., Grootenhuis, Martha A.
Published in Cancer (15.07.2022)
Published in Cancer (15.07.2022)
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Recommendations on the use of item libraries for patient-reported outcome measurement in oncology trials: findings from an international, multidisciplinary working group
Piccinin, Claire, Basch, Ethan, Bhatnagar, Vishal, Calvert, Melanie, Campbell, Alicyn, Cella, David, Cleeland, Charles S, Coens, Corneel, Darlington, Anne-Sophie, Dueck, Amylou C, Groenvold, Mogens, Herold, Ralf, King-Kallimanis, Bellinda L, Kluetz, Paul G, Kuliś, Dagmara, O'Connor, Daniel, Oliver, Kathy, Pe, Madeline, Reeve, Bryce B, Reijneveld, Jaap C, Wang, Xin Shelley, Bottomley, Andrew
Published in The lancet oncology (01.02.2023)
Published in The lancet oncology (01.02.2023)
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Experiences of families post treatment for childhood brain tumours during medical clinic consultations regarding health‐related quality of life, unmet needs and communication barriers: A qualitative exploration
Bull, Kim S., Stubley, Shelly, Freeman, Anita, Liossi, Christina, Darlington, Anne‐Sophie E., Grootenhuis, Martha A., Hargrave, Darren, Morris, Christopher, Walker, David A., Kennedy, Colin R.
Published in Pediatric blood & cancer (01.11.2024)
Published in Pediatric blood & cancer (01.11.2024)
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Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions
Robertson, Eden G., Wakefield, Claire E., Shaw, Joanne, Darlington, Anne-Sophie, McGill, Brittany C., Cohn, Richard J., Fardell, Joanna E.
Published in Supportive care in cancer (01.11.2019)
Published in Supportive care in cancer (01.11.2019)
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Patient-reported outcomes are under-utilised in evaluating supportive therapies in paediatric oncology - A systematic review of clinical trial registries
Rothmund, Maria, Lehmann, Jens, Moser, Wiebke, de Rojas, Teresa, Sodergren, Samantha C, Darlington, Anne-Sophie, Riedl, David
Published in Critical reviews in oncology/hematology (01.08.2022)
Published in Critical reviews in oncology/hematology (01.08.2022)
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Disparities in intensity of treatment at end‐of‐life among children according to the underlying cause of death
Wolff, Sanne, Christiansen, Christian Fynbo, Johnsen, Soeren Paaske, Schroeder, Soeren, Darlington, Anne‐Sophie, Neergaard, Mette Asbjorn
Published in Acta Paediatrica (01.05.2021)
Published in Acta Paediatrica (01.05.2021)
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COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions
Tse, Yincent, Darlington, Anne-Sophie E., Tyerman, Kay, Wallace, Dean, Pankhurst, Tanya, Chantziara, Sofia, Culliford, David, Recio-Saucedo, Alejandra, Nagra, Arvind
Published in Pediatric nephrology (Berlin, West) (01.09.2021)
Published in Pediatric nephrology (Berlin, West) (01.09.2021)
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Preterm birth during the COVID‐19 pandemic: Parental experience
Marino, Luise V., Collaço, Nicole, Johnson, Mark J., Darlington, Anne‐Sophie
Published in Acta Paediatrica (01.04.2022)
Published in Acta Paediatrica (01.04.2022)
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Palliative and end of life care for a child: Understanding parents’ coping strategies
Darlington, Anne‐Sophie, Randall, Duncan, Leppard, Lisa, Koh, Michelle
Published in Acta Paediatrica (01.02.2021)
Published in Acta Paediatrica (01.02.2021)
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Quality of life of long‐term childhood acute lymphoblastic leukemia survivors: Comparison with healthy controls
Chantziara, Sofia, Musoro, Jammbe, Rowsell, Alison C., Sleurs, Charlotte, Coens, Corneel, Pe, Madeline, Suciu, Stefan, Kicinski, Michal, Missotten, Pierre, Vandecruys, Els, Uyttebroeck, Anne, Dresse, Marie‐Françoise, Pluchart, Claire, Ferster, Alina, Freycon, Claire, Bosch, Jutte Van Der Werff ten, Rohrlich, Pierre, Benoit, Yves, Darlington, Anne‐Sophie, Piette, Caroline
Published in Psycho-oncology (Chichester, England) (01.12.2022)
Published in Psycho-oncology (Chichester, England) (01.12.2022)
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Improving growth of infants with congenital heart disease using a consensus-based nutritional pathway
Marino, Luise V., Johnson, Mark J., Davies, Natalie J., Kidd, Catherine S., Fienberg, Julie, Richens, Trevor, Bharucha, Tara, Beattie, R. Mark, Darlington, Anne-Sophie E.
Published in Clinical nutrition (Edinburgh, Scotland) (01.08.2020)
Published in Clinical nutrition (Edinburgh, Scotland) (01.08.2020)
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Systematic review of health-related quality of life (HRQoL) issues associated with gastric cancer: capturing cross-cultural differences
Rowsell, Alison, Sodergren, Samantha C., Vassiliou, Vassilios, Darlington, Anne-Sophie, Guren, Marianne G., Alkhaffaf, Bilal, Moorbey, Chantelle, Dennis, Kristopher, Terada, Mitsumi
Published in Gastric cancer : official journal of the International Gastric Cancer Association and the Japanese Gastric Cancer Association (01.07.2022)
Published in Gastric cancer : official journal of the International Gastric Cancer Association and the Japanese Gastric Cancer Association (01.07.2022)
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Talking about Death with Children with Incurable Cancer: Perspectives from Parents
van der Geest, Ivana M.M., MD, van den Heuvel-Eibrink, Marry M., MD, PhD, van Vliet, Liesbeth M., PhD, Pluijm, Saskia M.F., PhD, Streng, Isabelle C., MSc, Michiels, Erna M.C., MD, PhD, Pieters, Rob, MD, PhD, Darlington, Anne-Sophie E., PhD
Published in The Journal of pediatrics (01.12.2015)
Published in The Journal of pediatrics (01.12.2015)
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