Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use
Coombes, Lucy H, Wiseman, Theresa, Lucas, Grace, Sangha, Amrit, Murtagh, Fliss EM
Published in Palliative Medicine (01.12.2016)
Published in Palliative Medicine (01.12.2016)
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Book Review
Journal Article
How do person‐centered outcome measures enable shared decision‐making for people with dementia and family carers?—A systematic review
Aworinde, Jesutofunmi, Ellis‐Smith, Clare, Gillam, Juliet, Roche, Moïse, Coombes, Lucy, Yorganci, Emel, Evans, Catherine J.
Published in Alzheimer's & dementia : translational research & clinical interventions (2022)
Published in Alzheimer's & dementia : translational research & clinical interventions (2022)
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Journal Article
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence
Holder, Pru, Coombes, Lucy, Chudleigh, Jane, Harding, Richard, Fraser, Lorna K
Published in Palliative Medicine (01.10.2024)
Published in Palliative Medicine (01.10.2024)
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Book Review
Journal Article
605 What constitutes ‘good quality care’ from the perspectives of children and young people with life-limiting and life-threatening conditions?
Braybrook, Debbie, Coombes, Lucy, Hannah May Scott, Harðardóttir, Daney, Bristowe, Katherine, Fraser, Lorna, Harding, Richard
Published in Archives of disease in childhood (01.07.2023)
Published in Archives of disease in childhood (01.07.2023)
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Journal Article
230 Implementing child-centred outcome measures into routine practice: A systematic review
Hannah May Scott, Braybrook, Debbie, Ellis-Smith, Clare, Harðardóttir, Daney, Bristowe, Katherine, Coombes, Lucy, Harding, Richard
Published in Archives of disease in childhood (01.07.2023)
Published in Archives of disease in childhood (01.07.2023)
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Journal Article
COVID-19: Impact on Pediatric Palliative Care
Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Higginson, Irene, Gao, Wei, Bluebond-Langner, Myra, Farsides, Bobbie, Murtagh, Fliss EM, Fraser, Lorna K, Harding, Richard
Published in Journal of pain and symptom management (01.07.2022)
Published in Journal of pain and symptom management (01.07.2022)
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Journal Article
The ‘surprise’ question in paediatric palliative care: A prospective cohort study
Burke, Kimberley, Coombes, Lucy Helen, Menezes, Antoinette, Anderson, Anna-Karenia
Published in Palliative medicine (01.02.2018)
Published in Palliative medicine (01.02.2018)
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Journal Article
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition
Bristowe, Katherine, Braybrook, Debbie, Scott, Hannah M, Coombes, Lucy, Harðardóttir, Daney, Roach, Anna, Ellis-Smith, Clare, Bluebond-Langner, Myra, Fraser, Lorna, Downing, Julia, Murtagh, Fliss, Harding, Richard
Published in Palliative medicine (01.03.2024)
Published in Palliative medicine (01.03.2024)
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Journal Article
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study
Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Scott, Hannah, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Bluebond-Langner, Myra, Fraser, Lorna K., Downing, Julia, Farsides, Bobbie, Murtagh, Fliss E. M., Harding, Richard
Published in European journal of pediatrics (01.10.2022)
Published in European journal of pediatrics (01.10.2022)
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Journal Article
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Downing, Julia, Murtagh, Fliss EM, Farsides, Bobbie, Fraser, Lorna K, Bluebond-Langner, Myra, Harding, Richard
Published in Palliative medicine (01.06.2023)
Published in Palliative medicine (01.06.2023)
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Journal Article
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders
Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Harðardóttir, Daney, Roach, Anna, Bristowe, Katherine, Bluebond-Langner, Myra, Fraser, Lorna K, Downing, Julia, Farsides, Bobbie, Murtagh, Fliss EM, Ellis-Smith, Clare, Harding, Richard
Published in Palliative medicine (01.04.2024)
Published in Palliative medicine (01.04.2024)
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Journal Article
Cognitive testing of the Children’s Palliative Outcome Scale (C-POS) with children, young people and their parents/carers
Coombes, Lucy, Braybrook, Debbie, Harðardóttir, Daney, Scott, Hannah May, Bristowe, Katherine, Ellis-Smith, Clare, Fraser, Lorna K, Downing, Julia, Bluebond-Langner, Myra, Murtagh, Fliss EM, Harding, Richard
Published in Palliative medicine (01.06.2024)
Published in Palliative medicine (01.06.2024)
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Journal Article
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children’s research involvement group and expert item generation
Coombes, Lucy, Harðardóttir, Daney, Braybrook, Debbie, Scott, Hannah May, Bristowe, Katherine, Ellis-Smith, Clare, Fraser, Lorna K, Downing, Julia, Bluebond-Langner, Myra, Murtagh, Fliss EM, Harding, Richard
Published in Palliative medicine (01.12.2023)
Published in Palliative medicine (01.12.2023)
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Journal Article
Knowledge, attitudes and beliefs about paediatric palliative care
Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Harðardóttir, Daney, Gaczkowska, Inez, Harding, Richard
Published in Annals of palliative medicine (01.01.2023)
Published in Annals of palliative medicine (01.01.2023)
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Journal Article
Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members
Coombes, Lucy, Harðardóttir, Daney, Braybrook, Debbie, Roach, Anna, Scott, Hannah, Bristowe, Katherine, Ellis-Smith, Clare, Downing, Julia, Bluebond-Langner, Myra, Fraser, Lorna K., Murtagh, Fliss E. M., Harding, Richard
Published in The patient : patient-centered outcomes research (01.09.2023)
Published in The patient : patient-centered outcomes research (01.09.2023)
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Journal Article
Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey
Veldhuijzen van Zanten, Sophie E M, van Meerwijk, Charlotte L L I, Jansen, Marc H A, Twisk, Jos W R, Anderson, Anna-Karenia, Coombes, Lucy, Breen, Maggie, Hargrave, Olivia J, Hemsley, June, Craig, Finella, Cruz, Ofelia, Kaspers, Gertjan J L, van Vuurden, Dannis G, Hargrave, Darren R
Published in Neuro-oncology (Charlottesville, Va.) (01.04.2016)
Published in Neuro-oncology (Charlottesville, Va.) (01.04.2016)
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Journal Article
The use of rapid onset fentanyl in children and young people for breakthrough cancer pain
Coombes, Lucy, Burke, Kimberley, Anderson, Anna-Karenia
Published in Scandinavian journal of pain (01.10.2017)
Published in Scandinavian journal of pain (01.10.2017)
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Journal Article
Knowledge, attitudes and beliefs about paediatric palliative care
Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Harðardóttir, Daney, Gaczkowska, Inez, Harding, Richard
Published in Annals of palliative medicine (01.01.2023)
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Published in Annals of palliative medicine (01.01.2023)
Journal Article