An observational cohort study on impact, dimensions and outcome of perceived fatigue in adult 5q-spinal muscular atrophy patients receiving nusinersen treatment
Binz, Camilla, Schreiber-Katz, Olivia, Kumpe, Mareike, Ranxha, Gresa, Siegler, Hannah, Wieselmann, Gary, Petri, Susanne, Osmanovic, Alma
Published in Journal of neurology (01.03.2021)
Published in Journal of neurology (01.03.2021)
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Treatment expectations and patient-reported outcomes of nusinersen therapy in adult spinal muscular atrophy
Osmanovic, Alma, Ranxha, Gresa, Kumpe, Mareike, Müschen, Lars, Binz, Camilla, Wiehler, Flavia, Paracka, Lejla, Körner, Sonja, Kollewe, Katja, Petri, Susanne, Schreiber-Katz, Olivia
Published in Journal of neurology (01.08.2020)
Published in Journal of neurology (01.08.2020)
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Treatment satisfaction in 5q-spinal muscular atrophy under nusinersen therapy
Osmanovic, Alma, Ranxha, Gresa, Kumpe, Mareike, Wurster, Claudia D., Stolte, Benjamin, Cordts, Isabell, Günther, René, Freigang, Maren, Müschen, Lars H., Binz, Camilla, Hermann, Andreas, Deschauer, Marcus, Lingor, Paul, Ludolph, Albert C., Hagenacker, Tim, Schreiber-Katz, Olivia, Petri, Susanne
Published in Therapeutic advances in neurological disorders (2021)
Published in Therapeutic advances in neurological disorders (2021)
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Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives
Schischlevskij, Pavel, Cordts, Isabell, Günther, René, Stolte, Benjamin, Zeller, Daniel, Schröter, Carsten, Weyen, Ute, Regensburger, Martin, Wolf, Joachim, Schneider, Ilka, Hermann, Andreas, Metelmann, Moritz, Kohl, Zacharias, Linker, Ralf A., Koch, Jan Christoph, Stendel, Claudia, Müschen, Lars H., Osmanovic, Alma, Binz, Camilla, Klopstock, Thomas, Dorst, Johannes, Ludolph, Albert C., Boentert, Matthias, Hagenacker, Tim, Deschauer, Marcus, Lingor, Paul, Petri, Susanne, Schreiber-Katz, Olivia
Published in Brain sciences (04.06.2021)
Published in Brain sciences (04.06.2021)
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Journal Article
Cerebrospinal Fluid Parameters in Antisense Oligonucleotide-Treated Adult 5q-Spinal Muscular Atrophy Patients
Müschen, Lars Hendrik, Osmanovic, Alma, Binz, Camilla, Jendretzky, Konstantin F, Ranxha, Gresa, Bronzlik, Paul, Abu-Fares, Omar, Wiehler, Flavia, Möhn, Nora, Hümmert, Martin W, Gingele, Stefan, Götz, Friedrich, Stangel, Martin, Skripuletz, Thomas, Schreiber-Katz, Olivia, Petri, Susanne
Published in Brain sciences (26.02.2021)
Published in Brain sciences (26.02.2021)
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Journal Article
Validity and reliability of the German multidimensional fatigue inventory in spinal muscular atrophy
Binz, Camilla, Osmanovic, Alma, Thomas, Nele H., Stolte, Benjamin, Freigang, Maren, Cordts, Isabell, Griep, Ramona, Uzelac, Zeljko, Wurster, Claudia D., Kamm, Christoph, Siegler, Hannah A., Wieselmann, Gary, Hermann, Andreas, Lingor, Paul, Deschauer, Marcus, Ludolph, Albert C., Meyer, Thomas, Günther, René, Hagenacker, Tim, Petri, Susanne, Schreiber‐Katz, Olivia
Published in Annals of clinical and translational neurology (01.03.2022)
Published in Annals of clinical and translational neurology (01.03.2022)
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