Confidential genetic testing and electronic health records: A survey of current practices among Huntington disease testing centers
Eno, Celeste C., Barton, Stacey K., Dorrani, Naghmeh, Cederbaum, Stephen D., Deignan, Joshua L., Grody, Wayne W.
Published in Molecular genetics & genomic medicine (01.01.2020)
Published in Molecular genetics & genomic medicine (01.01.2020)
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Journal Article
Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)
Carlozzi, Noelle E., Boileau, Nicholas R., Roché, Matthew W., Ready, Rebecca E., Perlmutter, Joel S., Chou, Kelvin L., Barton, Stacey K., McCormack, Michael K., Stout, Julie C., Cella, David, Miner, Jennifer A., Paulsen, Jane S.
Published in Quality of life research (01.12.2020)
Published in Quality of life research (01.12.2020)
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Journal Article
End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning
Carlozzi, Noelle E., Boileau, Nicholas R., Paulsen, Jane S., Perlmutter, Joel S., Lai, Jin-Shei, Hahn, Elizabeth A., McCormack, Michael K., Nance, Martha A., Cella, David, Barton, Stacey K., Downing, Nancy R.
Published in Journal of neurology (01.10.2019)
Published in Journal of neurology (01.10.2019)
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Journal Article
Factors Associated With End-of-Life Planning in Huntington Disease
Downing, Nancy R, Goodnight, Siera, Chae, Sena, Perlmutter, Joel S, McCormack, Michael, Hahn, Elizabeth, Barton, Stacey K, Carlozzi, Noelle
Published in American journal of hospice & palliative medicine (01.03.2018)
Published in American journal of hospice & palliative medicine (01.03.2018)
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Journal Article
Suicidal Ideation Assessment in Individuals with Premanifest and Manifest Huntington Disease
Wesson, Melissa, Boileau, Nicholas R, Perlmutter, Joel S, Paulsen, Jane S, Barton, Stacey K, McCormack, Michael K, Carlozzi, Noelle E
Published in Journal of Huntington's disease (01.01.2018)
Published in Journal of Huntington's disease (01.01.2018)
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Journal Article
Responsiveness to Change Over Time: An Examination of the Neuro-QoL Social Function Measures in Persons with Huntington's Disease
Carlozzi, Noelle E, Boileau, Nicholas R, Hahn, Elizabeth A, Barton, Stacey K, Cella, David, McCormack, Michael K, Ready, Rebecca E
Published in Journal of Huntington's disease (01.01.2020)
Published in Journal of Huntington's disease (01.01.2020)
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Journal Article
Positive Affect and Well-Being in Huntington's Disease Moderates the Association Between Functional Impairment and HRQOL Outcomes
Ready, Rebecca E, Boileau, Nicholas R, Barton, Stacey K, Lai, Jin-Shei, McCormack, Michael K, Cella, David, Fritz, Nora E, Paulsen, Jane S, Carlozzi, Noelle E
Published in Journal of Huntington's disease (01.01.2019)
Published in Journal of Huntington's disease (01.01.2019)
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Journal Article