Preparing newborn screening for the future: a collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system
Andrews, Sara M, Porter, Katherine Ackerman, Bailey, Jr, Donald B, Peay, Holly L
Published in BMC pediatrics (12.02.2022)
Published in BMC pediatrics (12.02.2022)
Get full text
Journal Article
Parental coping with uncertainties along the severe combined immunodeficiency journey
Kutsa, Oksana, Andrews, Sara M., Mallonee, Erin, Gwaltney, Angela, Creamer, Alissa, Han, Paul K. J., Raspa, Melissa, Biesecker, Barbara B.
Published in Orphanet journal of rare diseases (27.10.2022)
Published in Orphanet journal of rare diseases (27.10.2022)
Get full text
Journal Article
Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study
Gehtland, Lisa M, Paquin, Ryan S, Andrews, Sara M, Lee, Adam M, Gwaltney, Angela, Duparc, Martin, Pfaff, Emily R, Bailey, Jr, Donald B
Published in JMIR pediatrics and parenting (10.02.2022)
Published in JMIR pediatrics and parenting (10.02.2022)
Get full text
Journal Article
Caregivers' assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome
Porter, Katherine Ackerman, O’Neill, Cara, Drake, Elise, Andrews, Sara M., Delaney, Kathleen, Parker, Samantha, Escolar, Maria L., Montgomery, Stacey, Moon, William, Worrall, Carolyn, Peay, Holly L.
Published in Journal of patient-reported outcomes (25.04.2022)
Published in Journal of patient-reported outcomes (25.04.2022)
Get full text
Journal Article
Chronic disease management perspectives of colorectal cancer survivors using the Veterans Affairs healthcare system: a qualitative analysis
Zullig, Leah L, Goldstein, Karen M, Bosworth, Hayden B, Andrews, Sara M, Danus, Susanne, Jackson, George L, Provenzale, Dawn, Weinberger, Morris, Kelley, Michael J, Voils, Corrine I
Published in BMC health services research (09.03.2018)
Published in BMC health services research (09.03.2018)
Get full text
Journal Article
Understanding women veterans' preferences for peer support interventions to promote heart healthy behaviors: A qualitative study
Goldstein, Karen M, Zullig, Leah L, Oddone, Eugene Z, Andrews, Sara M, Grewe, Mary E, Danus, Susanne, Heisler, Michele, Bastian, Lori A, Voils, Corrine I
Published in Preventive medicine reports (01.06.2018)
Published in Preventive medicine reports (01.06.2018)
Get full text
Journal Article
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening
Raspa, Melissa, Kutsa, Oksana, Andrews, Sara M, Gwaltney, Angela Y, Mallonee, Erin, Creamer, Alissa, Han, Paul K J, Biesecker, Barbara B
Published in European journal of human genetics : EJHG (01.04.2024)
Published in European journal of human genetics : EJHG (01.04.2024)
Get full text
Journal Article
Specificity of Early Childhood Hyperphagia Profiles in Neurogenetic Conditions
Andrews, Sara M, Panjwani, Anita A, Potter, Sarah Nelson, Hamrick, Lisa R, Wheeler, Anne C, Kelleher, Bridgette L
Published in American journal on intellectual and developmental disabilities (01.05.2024)
Published in American journal on intellectual and developmental disabilities (01.05.2024)
Get full text
Journal Article
Feeding practices and weight status of children with congenital Zika syndrome: A longitudinal study in Brazil
Frawley, Hannah E, Andrews, Sara M, Wheeler, Anne C, Nobrega, Lucélia L, Firmino, Raine C B, da Silva, Claudia M, Bezerra, Pollyanna, Ventura, Camila V, Cavalcanti, Andre, Williams, Jason, Flax, Valerie L
Published in Journal of pediatric gastroenterology and nutrition (01.09.2024)
Published in Journal of pediatric gastroenterology and nutrition (01.09.2024)
Get more information
Journal Article
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record
Andrews, Sara M, Raspa, Melissa, Edwards, Anne, Moultrie, Rebecca, Turner-Brown, Lauren, Wagner, Laura, Alvarez Rivas, Alexandra, Frisch, Mary Katherine, Wheeler, Anne C
Published in Journal of the American Medical Informatics Association : JAMIA (01.03.2020)
Published in Journal of the American Medical Informatics Association : JAMIA (01.03.2020)
Get full text
Journal Article
GM1‐gangliosidosis: The caregivers' assessments of symptom impact and most important symptoms to treat
Bingaman, Amanda, Waggoner, Christine, Andrews, Sara M., Pangonis, Diana, Trad, Marie, Giugliani, Roberto, Giorgino, Ruben, Jarnes, Jeanine, Vakili, Rojan, Ballard, Victoria, Peay, Holly L.
Published in American journal of medical genetics. Part A (01.02.2023)
Published in American journal of medical genetics. Part A (01.02.2023)
Get full text
Journal Article
Cost-effectiveness of Community-Based Minigrants to Increase Physical Activity in Youth
Moore, Justin B, Heboyan, Vahé, Oniffrey, Theresa M, Brinkley, Jason, Andrews, Sara M, Kolbe, Mary Bea
Published in Journal of public health management and practice (01.07.2017)
Published in Journal of public health management and practice (01.07.2017)
Get more information
Journal Article
Patient perceptions of a comprehensive telemedicine intervention to address persistent poorly controlled diabetes
Andrews, Sara M, Sperber, Nina R, Gierisch, Jennifer M, Danus, Susanne, Macy, Stephanie L, Bosworth, Hayden B, Edelman, David, Crowley, Matthew J
Published in Patient preference and adherence (01.01.2017)
Published in Patient preference and adherence (01.01.2017)
Get full text
Journal Article
Barriers and Facilitators to Adoption of Genomic Services for Colorectal Care within the Veterans Health Administration
Sperber, Nina R, Andrews, Sara M, Voils, Corrine I, Green, Gregory L, Provenzale, Dawn, Knight, Sara
Published in Journal of personalized medicine (28.04.2016)
Published in Journal of personalized medicine (28.04.2016)
Get full text
Journal Article