The Huntington’s Disease Health Index: Initial Evaluation of a Disease-Specific Patient Reported Outcome Measure
Brumfield, Olivia S., Zizzi, Christine E., Dilek, Nuran, Alexandrou, Danae G., Glidden, Alistair M., Rosero, Spencer, Weinstein, Jennifer, Seabury, Jamison, Kaat, Aaron, McDermott, Michael P., Dorsey, E. Ray, Heatwole, Chad R.
Published in Journal of Huntington's disease (2022)
Published in Journal of Huntington's disease (2022)
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Reverse Correlation Uncovers More Complete Tinnitus Spectra
Hoyland, Alec, Barnett, Nelson V., Roop, Benjamin W., Alexandrou, Danae, Caplan, Myah, Mills, Jacob, Parrell, Benjamin, Chari, Divya A., Lammert, Adam C.
Published in IEEE open journal of engineering in medicine and biology (01.01.2023)
Published in IEEE open journal of engineering in medicine and biology (01.01.2023)
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Patient‐ and caregiver‐reported impact of symptoms in Duchenne muscular dystrophy
Rosero, Spencer, Weinstein, Jennifer, Seabury, Jamison, Varma, Anika, Dilek, Nuran, Zizzi, Christine, Coffey, Madeleine, Greco, Brittany, Heatwole, John, Alexandrou, Danae, Guntrum, Debra, Ciafaloni, Emma, Heatwole, Chad
Published in Muscle & nerve (01.07.2024)
Published in Muscle & nerve (01.07.2024)
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Journal Article
Development, validation, and translation of patient- and caregiver- reported outcome measures for Duchenne Muscular Dystrophy (DMD): DMD-HI and DMDCR-HI
Khosa, Shaweta, Varma, Anika, Weinstein, Jennifer, Rosero, Spencer, Seabury, Jamison, Dilek, Nuran, Zizzi, Christine, Engebrecht, Charlotte, Heatwole, John, Cohen, Brittany, Alexandrou, Danae, Guntrum, Debra, Ciafaloni, Emma, Heatwole, Chad
Published in Journal of the neurological sciences (01.12.2023)
Published in Journal of the neurological sciences (01.12.2023)
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Patient-Reported Impact of Symptoms in Friedreich Ataxia
Seabury, Jamison, Alexandrou, Danae, Dilek, Nuran, Cohen, Brittany, Heatwole, John, Larkindale, Jane, Lynch, David R, Park, Courtney, Rosero, Spencer, Subramony, Sub H, Varma, Anika, Wagner, Ellen, Walther, Susan, Weinstein, Jennifer, Wells, McKenzie, Zizzi, Christine, Heatwole, Chad
Published in Neurology (21.02.2023)
Published in Neurology (21.02.2023)
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Journal Article
Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional Study
Rosero, Spencer, Weinstein, Jennifer, Seabury, Jamison, Zizzi, Christine, Wagner, Ellen, Varma, Anika, Heatwole, John, Alexandrou, Danae, Ms, Nuran Dilek, Johnson, Brent A, Heatwole, Chad
Published in Journal of child neurology (01.02.2023)
Published in Journal of child neurology (01.02.2023)
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Journal Article
The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure
Varma, Anika, Weinstein, Jennifer, Seabury, Jamison, Rosero, Spencer, Zizzi, Christine, Alexandrou, Danae, Wagner, Ellen, Dilek, Nuran, Heatwole, John, Wuu, Joanne, Caress, James, Bedlack, Richard, Granit, Volkan, Statland, Jeffrey, Mehta, Paul, Benatar, Michael, Kaat, Aaron, Heatwole, Chad
Published in Amyotrophic lateral sclerosis and frontotemporal degeneration (03.07.2023)
Published in Amyotrophic lateral sclerosis and frontotemporal degeneration (03.07.2023)
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Journal Article
Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): a national, cross-sectional study
Zizzi, Christine, Seabury, Jamison, Rosero, Spencer, Alexandrou, Danae, Wagner, Ellen, Weinstein, Jennifer S., Varma, Anika, Dilek, Nuran, Heatwole, John, Wuu, Joanne, Caress, James, Bedlack, Richard, Granit, Volkan, Statland, Jeffrey M., Mehta, Paul, Benatar, Michael, Heatwole, Chad
Published in EClinicalMedicine (01.01.2023)
Published in EClinicalMedicine (01.01.2023)
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Journal Article
Friedreich Ataxia Caregiver-Reported Health Index: Development of a Novel, Disease-Specific Caregiver-Reported Outcome Measure
Seabury, Jamison, Varma, Anika, Weinstein, Jennifer, Rosero, Spencer J, Engebrecht, Charlotte, Khosa, Shaweta, Zizzi, Christine, Wagner, Ellen S, Alexandrou, Danae, Cohen, Brittany L, Dilek, Nuran, Heatwole, John M, Lynch, David R, Park, Courtney C, Wells, McKenzie, Subramony, S H, Heatwole, Chad R
Published in Neurology. Clinical practice (01.06.2024)
Published in Neurology. Clinical practice (01.06.2024)
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Journal Article
Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure
Seabury, Jamison, Rosero, Spencer, Varma, Anika, Weinstein, Jennifer, Engebrecht, Charlotte, Dilek, Nuran, Heatwole, John, Alexandrou, Danae, Cohen, Brittany, Larkindale, Jane, Lynch, David R, Park, Courtney, Subramony, Sub H, Wagner, Ellen, Walther, Susan, Wells, McKenzie, Zizzi, Christine, Heatwole, Chad
Published in Neurology. Clinical practice (01.10.2023)
Published in Neurology. Clinical practice (01.10.2023)
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Journal Article
Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional studyResearch in context
Christine Zizzi, Jamison Seabury, Spencer Rosero, Danae Alexandrou, Ellen Wagner, Jennifer S. Weinstein, Anika Varma, Nuran Dilek, John Heatwole, Joanne Wuu, James Caress, Richard Bedlack, Volkan Granit, Jeffrey M. Statland, Paul Mehta, Michael Benatar, Chad Heatwole
Published in EClinicalMedicine (01.01.2023)
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Published in EClinicalMedicine (01.01.2023)
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