Defining the complex needs of families with rare diseases-the example of telomere biology disorders
Wilsnack, Catherine, Rising, Camella J, Pearce, Emily E, Forbes Shepherd, Rowan, Thompson, Ashley S, Majid, Alina, Werner-Lin, Allison, Savage, Sharon A, Hutson, Sadie P
Published in European journal of human genetics : EJHG (01.10.2024)
Published in European journal of human genetics : EJHG (01.10.2024)
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Journal Article
Sources of Uncertainty and Their Association with Medical Decision Making: Exploring Mechanisms in Fanconi Anemia
Hamilton, Jada G., Hutson, Sadie P., Moser, Richard P., Kobrin, Sarah C., Frohnmayer, Amy E., Alter, Blanche P., Han, Paul K. J.
Published in Annals of behavioral medicine (01.10.2013)
Published in Annals of behavioral medicine (01.10.2013)
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Journal Article
Genetic Information-Seeking Behaviors and Knowledge among Family Members and Patients with Inherited Bone Marrow Failure Syndromes
Hamilton, Jada G., Hutson, Sadie P., Frohnmayer, Amy E., Han, Paul K. J., Peters, June A., Carr, Ann G., Alter, Blanche P.
Published in Journal of genetic counseling (01.10.2015)
Published in Journal of genetic counseling (01.10.2015)
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Journal Article
The use of haematopoietic stem cell transplantation in Fanconi anaemia patients: a survey of decision making among families in the US and Canada
Hutson, Sadie P., Han, Paul K. J., Hamilton, Jada G., Rife, Sean C., Al‐Rahawan, Mohamad M., Moser, Richard P., Duty, Seth P., Anand, Sheeba, Alter, Blanche P.
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2015)
Published in Health expectations : an international journal of public participation in health care and health policy (01.10.2015)
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Journal Article
BRCA mutation-negative women from hereditary breast and ovarian cancer families: a qualitative study of the BRCA-negative experience
Bakos, Alexis D., Hutson, Sadie P., Loud, Jennifer T., Peters, June A., Giusti, Ruthann M., Greene, Mark H.
Published in Health expectations : an international journal of public participation in health care and health policy (01.09.2008)
Published in Health expectations : an international journal of public participation in health care and health policy (01.09.2008)
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Journal Article
Local implementation of cancer control activities in rural Appalachia, 2006
Behringer, Bruce, Mabe, Karen Harrell, Dorgan, Kelly A, Hutson, Sadie P
Published in Preventing chronic disease (01.01.2009)
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Published in Preventing chronic disease (01.01.2009)
Journal Article