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Dynamic Consent: a potential solution to some of the challenges of modern biomedical research
Budin-Ljøsne, Isabelle, Teare, Harriet J. A., Kaye, Jane, Beck, Stephan, Bentzen, Heidi Beate, Caenazzo, Luciana, Collett, Clive, D’Abramo, Flavio, Felzmann, Heike, Finlay, Teresa, Javaid, Muhammad Kassim, Jones, Erica, Katić, Višnja, Simpson, Amy, Mascalzoni, Deborah
Published in BMC medical ethics (25.01.2017)
Published in BMC medical ethics (25.01.2017)
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Journal Article
Evaluation of a blockchain‐based dynamic consent platform (METORY) in a decentralized and multicenter clinical trial using virtual drugs
Huh, Ki Young, Moon, Seol Ju, Jeong, Sang‐un, Kim, Min‐Ji, Yang, Wooseok, Jeong, Myeonggyu, Kim, Min‐Gul, Lee, SeungHwan
Published in Clinical and translational science (01.05.2022)
Published in Clinical and translational science (01.05.2022)
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Journal Article
Privacy-First Paradigm for Dynamic Consent Management Systems: Empowering Data Subjects through Decentralized Data Controllers and Privacy-Preserving Techniques
Khalid, Muhammad Irfan, Ahmed, Mansoor, Helfert, Markus, Kim, Jungsuk
Published in Electronics (Basel) (01.12.2023)
Published in Electronics (Basel) (01.12.2023)
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Journal Article
Enhancing Data Protection in Dynamic Consent Management Systems: Formalizing Privacy and Security Definitions with Differential Privacy, Decentralization, and Zero-Knowledge Proofs
Khalid, Muhammad Irfan, Ahmed, Mansoor, Kim, Jungsuk
Published in Sensors (Basel, Switzerland) (01.09.2023)
Published in Sensors (Basel, Switzerland) (01.09.2023)
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Journal Article
Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review
Lee, Ah Ra, Koo, Dongjun, Kim, Il Kon, Lee, Eunjoo, Kim, Hyun Ho, Yoo, Sooyoung, Kim, Jeong-Hyun, Choi, Eun Kyung, Lee, Ho-Young
Published in BMC medical ethics (01.12.2023)
Published in BMC medical ethics (01.12.2023)
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Journal Article
Can dynamic consent facilitate the protection of biomedical big data in biobanking in Malaysia?
Abdul Aziz, Mohammad Firdaus, Mohd Yusof, Aimi Nadia
Published in Asian bioethics review (01.06.2019)
Published in Asian bioethics review (01.06.2019)
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Journal Article
From Dynamic Consent to Dynamic Governance: An Architecture for the Traceability of HSR
Sandoz, Alain, Stiefel, Lea
Published in International Conference on eDemocracy & eGovernment (ICEDEG) (18.06.2025)
Published in International Conference on eDemocracy & eGovernment (ICEDEG) (18.06.2025)
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Conference Proceeding
Consent as a compositional act – a framework that provides clarity for the retention and use of data
Rivas Velarde, Minerva C., Lovis, Christian, Ienca, Marcello, Samer, Caroline, Hurst, Samia
Published in Philosophy, ethics, and humanities in medicine : PEHM (06.03.2024)
Published in Philosophy, ethics, and humanities in medicine : PEHM (06.03.2024)
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Journal Article
Development of Blockchain-Based Health Information Exchange Platform Using HL7 FHIR Standards: Usability Test
Bae, Ye Seul, Park, Yujin, Lee, Seung Min, Seo, Hee Hwa, Lee, Hyeonji, Ko, Taehoon, Lee, Eunsol, Park, Sang Min, Yoon, Hyung-Jin
Published in IEEE access (2022)
Published in IEEE access (2022)
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Journal Article
Why We Trust Dynamic Consent to Deliver on Privacy
Schuler Scott, Arianna, Goldsmith, Michael, Teare, Harriet, Webb, Helena, Creese, Sadie
Published in Trust Management XIII (2019)
Published in Trust Management XIII (2019)
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Book Chapter
Ethical analysis of informed consent methods in longitudinal cohort studies: A Chinese perspective
Li, Kun, Huang, Mingtao, Zhai, Xiaomei, Wang, Chen
Published in Developing world bioethics (01.06.2025)
Published in Developing world bioethics (01.06.2025)
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Journal Article
Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement
Munung, Nchangwi Syntia, Royal, Charmaine D, de Kock, Carmen, Awandare, Gordon, Nembaware, Victoria, Nguefack, Seraphin, Treadwell, Marsha, Wonkam, Ambroise
Published in The Hastings Center report (01.12.2024)
Published in The Hastings Center report (01.12.2024)
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Journal Article